This Is MS Multiple Sclerosis Community: Knowledge & Support

Wait until you come back!

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

No. The point of using this regime is that you pulse flagyl or tinidazole when it best suits you. The pathogens will be held in check by the bacteristatics so can be finished off by the bactericide at will. In fact, it is better not to rush into this stage and people that do will often pay for it.

L, enjoy your holiday and leave the flagyl until your return. It was decided that three months was better before starting on ths stage as more pathogens will be wasted before you do, meaning a clearer sailing. Then leave about three weeks before the next pulse and so on.

Sarah

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

I vote for waiting, also. Particularly as you'll probably be getting more sun, just by virtue of being on vacation. More sun/vitamin D = more cpn killed, which will give you enough die-off to deal with.

No need to add flagyl so quickly. You're still doing yourself a lot of good just by halting the ability of the cpn to multiply.

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Hi! I don't quite honestly know when I started feeling improvements because for the first two weeks I was completely out of it. I did feel that something was happening within two hours of taking my first doxycycline, but after hat I remember little, which is unusual because normally I pride myself on my memory.

One very early improvement though, was the complete disappearance of l'hermittes, after about a month or so.

When I was tested for Cpn, about three or four weeks after starting abx, my reading was so small that most people would have called it negative. This was at the time when the reading should hae shown even higher than when just starting treatment, but chlamydia (cloaked) pneumoniae is well named.

Sarah

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

Hi L, I'm glad you don't think you are having a relapse and also that the l'hermittes seems to have eased.

The weakness in your arms and the pins and needles might be just a ridding yourself of endotoxins sort of reaction which will eventually pass. Such things are symptoms of a number of different things, so there is nothing really to do but wait and see. As for the eye pain, I never had optic neuritis but after starting CAP, in the early days I had a number of strange eye events which came to nothing. I still don't need glasses.

Minocycline is very similar to doxycycline and both do the same things, but doxycycline is somewhat gentler. David prescribes it in preference for this reason.

Sarah

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

Well, its not ideal, but if you went down with a stomach bug, there would be no point in taking anything, so its up to you. I suppose if it goes then comes back when you restart the script, then maybe you need to try something else.

I hope your cold goes soon!

Sarah

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

That's good! If you had stopped the doxycycline it would have delayed flagyl. I think I said somewhere that l'hermittes was one of the first things to get completely better, probably because it was one of the last things to develop, my oldest lesions being all in the brain and l'hermittes being a spinal thing.

Which vitamins and supplements are you taking? Vitamin D is sina qua non and it will make you feel much better. Vitamin B12 is also essential for the brain and the sublinguals work as well, in my experience as the injections.

Take a look at these pages:

http://www.davidwheldon.co.uk/supplement_rationale.html

http://www.davidwheldon.co.uk/vit_D.html

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

I used to get lots of fishy burps when taking fish oil. I've tried the ones with added lemon but didn't like them. The solution for the fishy burps was to eat something immediately after taking the fish oil capsules. That put some food on top of the fish oil in my stomach and prevented the fishy burps. Hope this helps. Note that I've become much less sensitive to fish oil after several years of taking the capsules (currently at 6 grams per day).

NHE

If l'hermitte's is the feeling a rubber band has snapped inside your neck/shoulder, with a little electric shock added in, I had that just before I started abx. It happened maybe twenty times, whenever I dropped my head forward, toward my chest. It went away within the first ten days of abx and, thankfully, hasn't come back.

Wow, it sounds like everything is going well, so far! Pulse this week?

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

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No harm to take it every day if you can stomach it, but why don't you think you have Cpn? After all, you do have multiple sclerosis.

If you are getting rid of something else, though, you will only need flagyl if the organism has an anaerobic phase. Cpn is forced into this phase by taking the two antireplicatives and as far as I know this doesn't apply to anything else.

Sarah

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

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Testing for Cpn is not a very accurate procedure in any case! I registered as 1:64 so negative as far as many GPs are concerned, yet I reacted straight away to the antibiotics.

Since you are working to a timescale, you might as well do it all!

Sarah

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

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