My name is John and my wife has had "MS" since 2001. Looking for answers as she has steadily got worse has been hard. We tried betaseron to no effect (actually seemed to make the desease more progressive in nature), Steriods (did nothing), LDN no great impact. I started to come to the conclusion that maybe this was not MS so started looking at mis-diagnosis. This led me to Hughes syndrome (tested -ve) and Lyme.
Lyme seemed to fit the symptoms so we went to an LLMD in the UK and got tested. The results were: positive LTT Elispot, +ve CD57 (though not that low at 80), -ve Western Blot from Igenex but had band 41++ and several key bands rated IND which is a weak =ve)
DR diagnosed Lyme and we are treating with Cefuroxine at 100mg/day but I have now started looking into CPn as well and have some questions:
Bearing in mind the MS diagnosis, do you think it is likely that Avril has Lyme and CPn?
Will the CPn treatment treat Lyme effectively as well?
Will her Lyme treatment treat Cpn effectively if present?
WOuld it be worth trying to speak with/see Dr DW in the UK?
Thanks so much in advance for your help, I feel I am so close to an answer to all this but not quite there yet!