I come from Poland. And I would like to describe my friend story (33 year old female).
She started to have ongoing weird neurological symptoms in 2007 and then She was diagnosed as RRMS (many lesions in RMI).
She had 7 big relapses during first one and half year (twice optic neuritis with nystagmus , losing balance, drooping food, weakness and loss of sensation and co-ordination in hand, and of course numbness, tingling, dizziness, stiffness in legs etc.) , each time she took pulses iv steroids in large doses.
Because the progression of disease was so fast, we started to read everything about alternative methods of treatment.
Finally we made tests for Borrelia burgdorferi and coinfections.
PCR from cerebral fluid: Borrelia b. +;
PCR from bloot: Bartonella henselae +;
Some serological test for Cpn: IgA+ , IgG+; Yersinia +;
Western blot: Borrelia b.: 6 pt. +/-
We started with the first antibiotic over ten months ago.
First 1,5 month: ceftriaxone iv 2g/day, last 2 weeks puls tyni 1g/day.
Next 4 months : doxy form 200mg/day to 400mg/day; rifampicin from 300mg/day to 600mg/day; every month 10 days puls tyni 1g/day.
Next 2 months : doxy 400mg/day; tyni 1g every second day
Next 3 month: doxy 400mg/day; roxithromycin 300mg/day; every month 10 days puls tyni 1g/day.
Since 1,5 year she takes betaferon1B every second day (and still alive;)).
Now we consider to take 400mg doxy/day and 500mg azithromycin every second day and puls tyni 10 day/month.
Current symptoms: tingling, hypersensitive skin, week legs, after 5km walk., sometimes problems with balance. In spite of it the regression of symptoms is significant. No relapse during last 10 months and slowly recovering. Maybe there ware some JH reactions, but not very strong.
The question is, what she should do now? Her MD has not any big experiences in CAP. She want to finish the abax after full year CAP, because she would like to enlarge her family :).
What do you think about SM diagnosis in the context of serological and PCR tests?
What do you think about our antibiotic combination?
PS, sorry for my poor English.
Last edited by edi
on Sat Aug 08, 2009 6:44 am, edited 1 time in total.