Hi-I am new here and havent perused many of the threads yet, am interested in the zamboni stuff and antibiotics at the moment. I actually don't have an MS dx, cfs/fm, but that was years ago and I don't believe that a lot of things have been ruled out, am re-trying baclofen, super small dose, for spinal/shoulder spasms right now.
anyway, I was really inspired and impressed by this thread. This site seems great and more cogent than some of the cfs/fm sites, maybe because you have less of an "identity crisis" in the medical field than cfs/fm folks, but still a lot of questions on cause and cure like fm/cfs.
Robbie I hope your progress continues.
All of your perserverance is encouraging.
I am curious, did you feel like your back went out because of taking doxy?
I just tried 2 days of it and it feels like my neck went more out, it was on its way but it was really upsetting to me today as it hasnt felt this subluxated in years. I tend to be ultra sensitive to meds as have a detox problem breaking most things down.
do many ms folks have chemical sensitivities and have any of you had mostly pain in the cervical area? that doesnt seem as common. I suppose I should post somewhere else on some of that.
At any rate, I am excited about the abx potential, however, I work part time right now and I get herx really bad from things, like I can't take N-acetyl cysteine, get power headache bad, could have CPn, have never been tested for it, not sure what tests to ask for that arent lame.
I am also wondering if many of you guys doing abx were able to test for a bunch of infections etc before you tried the abx? I will explore the other abx threads too.
Back to the herx though, I am afraid to keep going with the doxy because I am not one to work well with the flu, just curl up into fetal position when feel real herxy, too much pain and grossness. So I dont know what to do, even pulsing them could be hard, am going to consult with doc on it.
thanks for sharing everything Robbie.