5 days of doxy

A forum for the discussion of antibiotics as a potential therapy for MS

Postby SarahLonglands » Fri Apr 16, 2010 10:49 am

Well, all I can say is that after nearly seven years for me, it still seems too good to be true. I still do have some permanent damage: I can't run or walk anywhere near as far as I used to, which was a heck of a long way. Its a shame but I am totally functional and I regained the use of my paralysed arm, so I can paint again. You might eventually regain more than you think, so might I because still see subtle improvements. I had MS for nearly twenty years before began treatment, having developed it straight out of university or maybe before.

Sarah :)
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Postby Loriyas » Fri Apr 16, 2010 11:56 am

Ohhhh the stairs Robbie! That is awesome!!! Sooo happy for you!!
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abx regiment

Postby Selmahope » Fri Apr 16, 2010 3:10 pm

sarah-what was your regiment for abx and how long?

Robbie- you are making great progress-I admire your spirit and accomplishment so far! How long have you been on the doxy so far?
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Postby SarahLonglands » Sat Apr 17, 2010 10:20 am

Selma, I used doxycycline and roxithromycin with pulses of metronidazole or tinidazole, with a six month break from doxycycline when I changed to rifampicin. I took this full time for just over a year and then changed to intermittent for the next three years: two weeks on and two months off. Now I just take a few supplements.

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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thank you sarah

Postby Selmahope » Sat Apr 17, 2010 12:12 pm

Thank you!-still sorting out my options- I wish I tolerated drugs better and did not have this horrific downward spirals from first herbs and now 2 years later a few weeks of drugs- So bad now - i know I must do something....

Have you considered any stem cell treatments or feel no need now since you are doing so well?
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incredible

Postby agatha » Mon May 03, 2010 9:59 am

Hi Robbie
I haven' been around since January because of SAD so I am gobsmacked to see your latest videos - how amazing are you?! Here's to ongoing improvements.
Agatha
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Postby robbie » Mon May 17, 2010 7:43 am

Got into our hot tub yesterday with some help from friends (it's been 5 years), getting in was eaiser than getting out. I was in for an hour and the heat didn't seem to bother me. Getting stronger.....
Had ms for over 19 years now.
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Postby whyRwehere » Mon May 17, 2010 1:24 pm

my aching body could do with one of those! Interesting the heat didn't bother you...glad to hear it.
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Postby Lyon » Mon May 17, 2010 1:28 pm

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Last edited by Lyon on Mon Nov 21, 2011 4:19 pm, edited 1 time in total.
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Postby carolew » Mon May 24, 2010 3:50 pm

Wow, Robbie, I just saw your video... I am so impressed!!!! Keep up the good work and keep the videos coming... wow... maked me think of trying it too (the doxy that is)... Carole
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Postby UWE59 » Wed Jun 09, 2010 7:30 am

Hi Robbie I´m here since a few days and I will start CAP as soon as I get the OK from my doc.
All the best for you !!!

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Postby robbie » Fri Jul 23, 2010 12:47 pm

I have started treatment for Lyme, alot more antibiotics than my self prescribe amount, both oral and IV which starts in two weeks. The next year or so will be intereting, I hope things can get even better. I am really confused about how this is happening but very grateful at the same time.
Had ms for over 19 years now.
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Postby whyRwehere » Fri Jul 23, 2010 1:06 pm

Good to hear Robbie, keep us posted on your progress, always worth reading!!
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Postby robbie » Thu Aug 12, 2010 8:51 am

Had a picc line put in my arm last Friday and had my 4th IV so far, still able to work out my arms. Was worried that with the picc line i would not be able to do dumb bells from my chair anymore. Still getting on the bowflex as well. Upper body is getting much stronger which is a good feeling. have an mri in September and maybe there will be a difference in the lesions i have.
Had ms for over 19 years now.
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Postby whyRwehere » Thu Aug 12, 2010 9:53 am

Good going, will be checking back in on you in September!
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