5 days of doxy

A forum for the discussion of antibiotics as a potential therapy for MS

Postby SarahLonglands » Thu Aug 12, 2010 10:00 am

Robbie, don't be disappointed if you don't see a reduction in lesions, but just be grateful if you see no increase. You will probably have many old lesions which never change but you can work around those. My brain still looks rather addled.

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
SarahLonglands
Family Elder
 
Posts: 2110
Joined: Thu Jun 17, 2004 3:00 pm
Location: Bedfordshire UK

Advertisement

Postby robbie » Sun Aug 29, 2010 11:12 am

Thanks Sarah when i think about all the damage done to me over the last 18 years i can't help but think what if i started this then, would i be in a wheelchair?. It's hard to thnk that way but at the same time it's hard not to. One day at a time.
Had ms for over 19 years now.
User avatar
robbie
Family Elder
 
Posts: 1148
Joined: Thu Jan 27, 2005 4:00 pm
Location: Northern Ontario, Canada

Postby SarahLonglands » Mon Aug 30, 2010 8:16 am

You probably wouldn't but Cpn was only discovered to be a pathogen in the late eighties and it took several years after that before people started to investigate its involvement with MS. I am not sure about lyme, but I think the timescale is similar. So I guess both of us have to realise that we couldn't have done things any sooner. You know, when I finished my MA I was planning to do a course in art restoration then go to Italy to help restore old gesso paintings, maybe Michelangelo's work in the Sistine Chapel........... None of this happened and one could say luckily because I might well have fallen from the scaffolding and killed myself before I hardly knew what was wrong with me..............Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
SarahLonglands
Family Elder
 
Posts: 2110
Joined: Thu Jun 17, 2004 3:00 pm
Location: Bedfordshire UK

Postby robbie » Mon Sep 13, 2010 11:07 am

I was just wondering about some reading i've been doing here and at other sites about how long people take antibiotics. I read that a lady on IV antibiotics didn't really notice any significant inprovments until after 4 months of being on the IV(for lyme) and others that have been taking oral antibiotics for years and are still improving(for CPN). Is this because whatever you are trying to kill just reacts differenty depending on the individual.My doctor said that the IV i take could be as long as 8 months if he sees an inprovement or at least a stop in progression of my brain lesions.How does anyone know when to stop?. You really don't know much except how you felt.before and after the antibiotics. Just crazy stuff!
Had ms for over 19 years now.
User avatar
robbie
Family Elder
 
Posts: 1148
Joined: Thu Jan 27, 2005 4:00 pm
Location: Northern Ontario, Canada

Postby SarahLonglands » Tue Sep 14, 2010 4:54 am

I think a lot is down to the individual: their metabolism and so on. For instance I have a very fast metabolism, which is why I am on the skinny side and I noticed improvements very quickly. I have never had anything intravenously. Talking about Cpn, Charles Stratton and Ram Sriram from Vanderbilt tend to advise taking antibiotics for four or five years full time to make sure that everything is cleared. All in all I took abx for four years but only one year of that was full time. I stopped having reactions to the abx way before four years but I was frightened to stop sooner in case the MS started progressing again.

You are right, it is crazy, but I think how you felt before and how you feel now is a guideline, but not entirely: I know someone who stopped after only nine months because he says he felt so well and he thought that taking abx for too long wasn't a good thing. A year later he had a stroke at the age of 35.

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
SarahLonglands
Family Elder
 
Posts: 2110
Joined: Thu Jun 17, 2004 3:00 pm
Location: Bedfordshire UK

Postby robbie » Tue Oct 05, 2010 7:31 am

Saw my doctor yesterday and he is switching the Flagyl to Azithromycin and see if i can tolerate that any better. Over all he is happy with the improvements he sees and says it's still early. The up and downs are really hard on the mind as well as the body so just got to keep plugging along.
Had ms for over 19 years now.
User avatar
robbie
Family Elder
 
Posts: 1148
Joined: Thu Jan 27, 2005 4:00 pm
Location: Northern Ontario, Canada

Postby SarahLonglands » Tue Oct 05, 2010 9:10 am

Azithromycin is a macrolide which by and large is not a killing antibiotic but it stops the pathogen from reproducing. Later on flagyl does most of the killing. If you print out this pdf file and give it to your doctor or email him the link, he will see the reasoning.................Sarah

http://www.davidwheldon.co.uk/ms-treatment.pdf
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
SarahLonglands
Family Elder
 
Posts: 2110
Joined: Thu Jun 17, 2004 3:00 pm
Location: Bedfordshire UK

Postby robbie » Sun Oct 17, 2010 5:37 am

Thanks Sarah for the document, i am taking both the Azithromycin and the Flagyl now, so will see how that goes. Had an MRI last week,i am hoping there will be some change or just the stop of progression.
Had ms for over 19 years now.
User avatar
robbie
Family Elder
 
Posts: 1148
Joined: Thu Jan 27, 2005 4:00 pm
Location: Northern Ontario, Canada

Postby SarahLonglands » Sun Oct 17, 2010 6:10 am

I'll keep my fingers crossed!! Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
SarahLonglands
Family Elder
 
Posts: 2110
Joined: Thu Jun 17, 2004 3:00 pm
Location: Bedfordshire UK

Postby robbie » Thu Nov 18, 2010 7:43 pm

Went to my neurologist today and she did her tests and at the end of our 15 minute visit she said "you seem to be in a holding pattern" I was realy glad to hear her say that. :D
Had ms for over 19 years now.
User avatar
robbie
Family Elder
 
Posts: 1148
Joined: Thu Jan 27, 2005 4:00 pm
Location: Northern Ontario, Canada

Postby Lyon » Thu Nov 18, 2010 8:12 pm

.
Last edited by Lyon on Sun Nov 20, 2011 5:18 pm, edited 1 time in total.
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 3:00 pm

Postby SarahLonglands » Fri Nov 19, 2010 7:21 am

Gosh, happy or what?

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
SarahLonglands
Family Elder
 
Posts: 2110
Joined: Thu Jun 17, 2004 3:00 pm
Location: Bedfordshire UK

Postby robbie » Tue Dec 07, 2010 11:35 am

Got the results of my last MRI it showed two new lesions and two that had disappeared. This MRI is being compared to one i had in August, 2008 . I started the full antibiotic treatment in August, 2010 so it is hard to compare these two MRI's.I am going to continue with antibiotics and another MRI down the road which will be a little more telling.
Had ms for over 19 years now.
User avatar
robbie
Family Elder
 
Posts: 1148
Joined: Thu Jan 27, 2005 4:00 pm
Location: Northern Ontario, Canada

robbie

Postby leetz » Tue Dec 07, 2010 11:29 pm

keep the faith...God is good!!! May you see many blessings in your future!!!!
GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...
User avatar
leetz
Family Elder
 
Posts: 294
Joined: Tue Oct 06, 2009 3:00 pm

Postby SarahLonglands » Wed Dec 08, 2010 7:09 am

Now, that looks promising..........Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
SarahLonglands
Family Elder
 
Posts: 2110
Joined: Thu Jun 17, 2004 3:00 pm
Location: Bedfordshire UK

PreviousNext

Return to Antibiotics

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service