a late observation

A forum for the discussion of antibiotics as a potential therapy for MS

a late observation

Postby whyRwehere » Tue Sep 15, 2009 1:42 am

I wrote on robbie's post, that my husband is still on abx, but as we have not done the flagyl pulses that much, I haven't had much to say. Well, then I thought there is one improvement, which is that he can often get through the night without having to go to the bathroom. That is pretty important, because it means he can sleep (if he isn't stressed and his brain is keeping him awake!). He just did a day's pulse...he notices that his urine is dark and stinky...like an old dog, he says. Unfortunately, his walking has gotten worse over the last 2 years. I feel a great part of this, is the muscle tone in his core has thrown him off, because there is no tone...he could do with gentle exercises there, but any time he bends his back he walks badly for a bit (as in, even worse).
Another interesting thing. We had a check up with a new neuro and despite us telling her his right leg was the weak one, she said it is the left that is weaker. Which means the right is probably a bit better, but the left is worse...
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Postby Anecdote » Wed Sep 16, 2009 7:13 am

WhyRwehwere, this is very good news, partly because being able to sleep right through the night is so beneficial, as you note.

As for the walking having got worse, you said somewhere else that he was very lethargic so presumably isn't exercising much, , so you are right: he is losing muscle tone and so doesn't walk as well. Perhaps now that he can sleep more at the right time, things will change.

Did you see my post about my new ability to sleep through the night after six years since sating abx and two years since finishing: http://www.thisisms.com/ftopic-5185-30.html

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Postby whyRwehere » Wed Sep 16, 2009 8:09 am

Yes, I am more optimistic than I was this summer. I would like to see him start his physiotherapy again, and maybe think about some support for his core...I wonder if that would help or make it worse. I look forward to seeing if doing the pulses more than we have, will also change things...will report if I notice anything. Thanks!
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