This Is MS Multiple Sclerosis Community: Knowledge & Support

Well, its a start I suppose: http://news.bbc.co.uk/1/hi/health/7136088.stm

"Antibioticsi are cheap and easil available, which could make them an attractive treatment for MSi if they were shown to be beneficial" - Dr Laura Bell, MS Society

Adding antibiotics to standard drug therapy may slow down the progress of multiple sclerosis, research suggests.

Patients showed fewer symptoms and fewer signs of tissue damage when they took the antibiotic doxycycline alongside the MS drug beta interferon.

Louisiana State University researchers believe the antibiotic may block the action of enzyme that destroy certain cells in the nervous system.

Archives of Neurology reports the study involving 15 patients on its website..........................


As important as the trial is the fact that the MS Society, presumably the British one, is waking up.............Sarah

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

Thanks for the link Sarah, usually I never miss those stories...I must have had a busy day. Too bad they still insist on "combined therapy". Did they try it with just the doxy? Maybe the results would have been the same, huh??
EDITED to add: That story is from 2007 and I didn't miss it the first time!
By the way, I'm tired of that same picture for every MS story...don't they know anyone else with MS?

It just shows how long it takes certain things to sink in with some people! They aren't even thinking of its purpose as an antibiotic and I guess wouldn't consider its use without a betaferon.

I am also heartily sick of seeing that picture, time and time again. There is also one of a frail old lady who keeps appearing in all manner of stories.

Sarah

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

At least Cpn got a mention here too.

True, which makes a change from me mentioning it on the MS Society site and getting it edited out. So I don't go there anymore.

I saw another thing on the BBC today which I'm not even going to think about: Cassandra Munger launching out from her good work has decided that people who were obese as teenagers are more likely to develop MS. And pigs might fly.

Sarah

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

This might be relevant to your comment above:

Simpson, Lisa et al. 1995 Temperate Swine Measures Dependent on Elevation: A role for malus domestica with porcus

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My Starting Point
Understanding MS 101: Doctor Talk and People Talk<br /><br />

Dash it, we can't see it yet in the UK!

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

BBC censorship? What is Dash it?

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My Starting Point
Understanding MS 101: Doctor Talk and People Talk<br /><br />

No, actually its HULU, not the BBC. When I tried to open the link, the message came up saying:



It'll come up on the Simpson's on channel 4 in due course.

Dash it just sounds a bit more polite than damn it! I often use worse.

Sarah

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

I really put some time into that. I feel like I told the joke and forgot the punch line.

http://vids.myspace.com/index.cfm?fusea ... d=34158635

Did that work?

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My Starting Point
Understanding MS 101: Doctor Talk and People Talk<br /><br />

Nope: "The requested video cannot be shown in your region."

Never mind, if anyone else happens along they can watch it.

I know someone here who one of us told the joke, he repeats it endlessly to us and others, but got the punchline completely wrong the first time!

Sarah

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

Sarah wrote:

Yes, I saw the article also -- actually, had two people who emailed it to me. That article was a real "head shaker" - sure hope there was not much money spent on the research!

Sharon

I just don't get how these stubborn researchers keep denying the cpn parameter in MS. Obviously several researches have shown interesting results with antibiotics, also with lisinopril... isn't that enough, knowing that cpn is involved in hypertension or cardiac problems (which realte to CCSVI, except that it affects the veins instead)... It all matches, so what else do they need? I also can't figure out why doctors who have studied for so long, practiced for so long, seem to have a very hard time finding what I have found in few months of reading researching... maybe doctors should first become sick of any disease they want to treat so that they will have no choice other than having a good faith first... Just like psychiatrists have first to go through an analysis themselves...
I think that would be fair enough:-)

Just another thing that came to my mind. Before I was diagnosed with ms, few years ago, doctors used to say I had spasmophilia... Interestingly enough, many people who started with spasmophilia ended up having MS... Knowing that Spasmophilia manifests itself with what is called anxiety, hyperventilation, and tremors... I think it would be interesting to see if CAP would help with this condition, which I am sure it would!...

Spasmophilia is a condition rather than a disease and can be caused by many things, but if someone is experiencing MS symptoms, they are very likely to have a panic attack and it might seem for no reason.

Sarah

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.