So it very much seems like im PPMS. Ive only been sick for 4 months but my disease is very progressive. Basically i got worse on a day by day basis until i accidentally took amoxycillin for a toothinfection and i noticed that i got better ( although it gave me a lot of burning sensations in my arms and legs, which i later realised is a good thing...). When i stopped i got worse. I changed to a BBD related diet which i noticed helped especially with my vertigo, took alot of vitamins and supplements which gave me my energy back. I started amoxycillin again.
Ive read alot at CPn help and got started on NAC (600mg per day so far) and replaced amoxycillin with doxycycline (100 mg per day). Didnt help as much as the amoxycillin did. But i could feel that the doxycycline helped a little, i get some buring sensations now and then, and i think it has helped with my visions light sensitivity.
So i added the roxithromycin and on the second day i could really feel it was helping. Alot less vibrations in my body. No doubt in my mind that this helps. On the third day the roxithromycin starts messing with my head. Basically i would describe it as slight confusion and unease and having abnormal weird, sometimes panicky and always unpleasant thoughts. Starting about 2 hours after ingestion and easing about 8 hours after ingestion. The fourth day the same. When i take it before bed i dont notice anything. Im scared to eat the roxithromycin now. I can deal with a lot of sideeffects but when it messes to much with my head i dont know if i can handle it.
Maybe i should try azithromycin instead or do you guys think it will be worse ? Is there other options ? Clarithromycin ?
I tolerate the amoxy and the doxy very well so this is a disappointment.
Anyway im glad i found this forum, its tough to tackle something like this alone and i need your help.....Any suggestions about anything is very much appreciated....