Anybody take Interferon and has no side effects?

A board to discuss the Multiple Sclerosis modifying drug Avonex

Postby ElJacko » Fri Feb 11, 2011 10:25 pm

I don't know, I don't think that they'll tell me until the trial is complete, in 12 months or so.

The permutations are:

1. was on placebo and now only have mild or no side effects, or
2. Was on real and don't get side effects

All that I do know so far is that I'm lucky enough to not get the nasty flu symptoms that some other people get. Fingers crossed that it continues this way
User avatar
ElJacko
Family Member
 
Posts: 30
Joined: Sat Jun 09, 2007 3:00 pm
Location: New Zealand

Advertisement

Postby smokey » Sat Feb 12, 2011 5:10 pm

Fingers crossed for you!! Let us know how you go.....
User avatar
smokey
Family Member
 
Posts: 93
Joined: Sun Mar 21, 2010 4:00 pm

Postby ElJacko » Mon Mar 28, 2011 1:09 am

Update:

I've had four jabs now and the "advertised" side effects are all there. 8 to 24 hours after the treatment I get headaches, high temperatures and chills and shivering, lasts abot 8 hours followed by a couple of days of feeling completely wipped out.

The good news I suppose is that I'm obviously not on a placebo anymore
User avatar
ElJacko
Family Member
 
Posts: 30
Joined: Sat Jun 09, 2007 3:00 pm
Location: New Zealand

Postby smokey » Tue Mar 29, 2011 1:30 am

ElJacko wrote:Update:

I've had four jabs now and the "advertised" side effects are all there. 8 to 24 hours after the treatment I get headaches, high temperatures and chills and shivering, lasts abot 8 hours followed by a couple of days of feeling completely wipped out.

The good news I suppose is that I'm obviously not on a placebo anymore


Sounds familiar! Although 2 years on, the side effects of the standard Avonex have lessened considerably.........hope your side effects ease off. Panadol is good!
User avatar
smokey
Family Member
 
Posts: 93
Joined: Sun Mar 21, 2010 4:00 pm

Postby smokey » Tue Mar 29, 2011 1:31 am

ElJacko wrote:Update:

I've had four jabs now and the "advertised" side effects are all there. 8 to 24 hours after the treatment I get headaches, high temperatures and chills and shivering, lasts abot 8 hours followed by a couple of days of feeling completely wipped out.

The good news I suppose is that I'm obviously not on a placebo anymore


Sounds like it! Sounds familiar! Although I had distressing side effects for about 6 months, two years on they have significantly decreased. Hope yours ease. Panadol might help?
User avatar
smokey
Family Member
 
Posts: 93
Joined: Sun Mar 21, 2010 4:00 pm

Re: Avonex side effects

Postby NHE » Tue Mar 29, 2011 3:49 am

ElJacko wrote:Update:

I've had four jabs now and the "advertised" side effects are all there. 8 to 24 hours after the treatment I get headaches, high temperatures and chills and shivering, lasts abot 8 hours followed by a couple of days of feeling completely wipped out.

The good news I suppose is that I'm obviously not on a placebo anymore


Acetaminophen, Tylenol, might help. However, I found ibuprofen to be much more effective when I was taking Avonex. Try 400 mg at the time of your shot and then 400 mg as needed every 4 to 6 hours after that.

NHE
User avatar
NHE
Volunteer Moderator
 
Posts: 3361
Joined: Sat Nov 20, 2004 4:00 pm

Postby ElJacko » Wed Mar 30, 2011 1:30 am

Thanks for the tips guys, as part of the study we are directed to take paracetamol but I'll try some of the others as well.
User avatar
ElJacko
Family Member
 
Posts: 30
Joined: Sat Jun 09, 2007 3:00 pm
Location: New Zealand

Re: Anybody take Interferon and has no side effects?

Postby lovebug » Sat Nov 19, 2011 8:53 pm

I have been on Avonex for about 2 years. No side effects and no site reactions. Sometimes I think I am injecting candy......... I have no idea if it helps. But than again do any of us pwMS know if these DMD`s really work? I am trying to find out more about the `interferon blood test`...........
User avatar
lovebug
Family Elder
 
Posts: 170
Joined: Fri Jan 01, 2010 4:00 pm
Location: Canada

Re: Anybody take Interferon and has no side effects?

Postby awdesigns8 » Tue Nov 22, 2011 1:46 pm

I TAKE AVONEX ITS BEEN 1 YEAR NO FLU LIKE SIDE EFFECTS NEVER HAD THEM I DO WONDER MY SELF IF IS THE AVONEX OR THE VITAMINS I TAKE LOVE APRIL
awdesigns8
Newbie
 
Posts: 5
Joined: Tue Nov 22, 2011 1:38 pm

Re: Anybody take Interferon and has no side effects?

Postby ShootingStar » Sun Jan 01, 2012 5:00 pm

The only issue I've had in 4 months on Avonex is a generally "blah" feeling on the morning after. Otherwise, it's been fine. I miss Tysabri though. :sad:

~Kim in NV
User avatar
ShootingStar
Family Member
 
Posts: 38
Joined: Tue Mar 25, 2008 4:00 pm
Location: Nevada, USA

Previous

Return to Avonex

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service