after what time?

A board to discuss the Multiple Sclerosis modifying drug Avonex

after what time?

Postby annbbe » Sat Feb 18, 2012 9:27 am

Hi everybody. I switched from Tysabri to Avonex. Could you please tell me after what time of taking it I could feel a bit better? 1 INJECT aVONEX once a week. yesterday I had my 10th injection (sooo...it's 2,5 months already). I am not sure if Avonex works for me...
Polish, 30yrs, dx 2000 RRMS, EDSS 5.

liberated in february the 2nd 2010:). Currently on double blind clinical trial with Avonex/Daclizumab.
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Re: after what time?

Postby euphoniaa » Sat Feb 18, 2012 9:52 am

annbbe wrote:Hi everybody. I switched from Tysabri to Avonex. Could you please tell me after what time of taking it I could feel a bit better? 1 INJECT aVONEX once a week. yesterday I had my 10th injection (sooo...it's 2,5 months already). I am not sure if Avonex works for me...

Hi annbbe,

Sadly, the MS meds are not expected to make you "feel better" as in improving symptoms at all. In fact, with the expected side effects - especially with the interferons - they're likely to make you "feel" worse in a lot of ways. Instead, it's hoped that they will possibly prevent slightly fewer exacerbations, and possibly slow your progression. That's all they really claim to do. And there's no way to really tell if they have done so in a particular patient.

I sure hope your doctor didn't lead you to believe otherwise. The research shows that on average, patients on the meds have slightly fewer exacerbations than ones who don't take the meds, so therefore, there's a chance that in some way it's "helping" your MS. There's no way to be sure. Also, please keep in touch with your doc if you feel worse, because of the possible "rebound" effect from stopping Ty.

Sorry I don't have better news! Good luck and keep us posted how you're doing. There may be others with more experience (and knowledge) who will stop in to this thread also.
Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)
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Re: after what time?

Postby jackD » Sat Feb 18, 2012 12:21 pm

If you read my posting just below yours on how to MAXIMIZE INTEFERON meds you will learn how they work.

avonex-f5/topic4186.html

You will learn that Avonex takes at least 6 months to start working properly. If your MS is active it will delay that time a lot. Do not expect to see much MRI results for 2 years.

Good luck! Ask questions.

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