I am 24 years old and live in Canada. I was diagnosed with MS after having my hepatitis B vaccine at the age of 15, when my right side became extremely "heavy" and I could barely move it (my right arm, leg, right side of my face etc.).
6 months after this "attack", I had another one in my left side, where it became cold (not physically to the touch, but it felt like that on the inside). After this second attack I was officially diagnosed and put on Avonex.
I have been on Avonex for over 8 years now, but am still getting terrible flu like side effects, and I get anxiety about having the needle (which my mom, who is a nurse, STILL has to do for me).
My neurologist says since I am doing SO incredibly well (with basically no relapses in 8 years), that I should try and come off of the Avonex.
So, I am giving it a try as of today....I figure if there is a time to try, it must be now. While I am young and relatively healthy and in good shape.
But I am kind of scared, worried, nervous....I have no idea if it is the shot that has been making me do so well, or if it just me? Also, it seems weird to me to just be going cold turkey like this after 8 years!
I am finally in a good spot in my life and am terrified of jeprodizing this.
Does anyone have a similar situation they have been through?
I am going to try and be as healthy as I can be in terms of eating well, exercising etc.....but any other pointers for people living with MS who aren't on medication would be much appreciated!