I am new to Avonex I have not started the injections, but I am very apprehensive because I was on Copaxone for 8 months and suffered. My hair was shedding very badly; I had constant relapses every month and had swelling, bruising and itching at the injection site. My neuro suggested Avonex, he stated it has less side effects. I hope he is correct. I have been medicine free (except for 50000 iu of Vitamin D) since August and have not had a relapse, no new lesions and I feel great. My neuro said it will not last long and that I need to be on some type of MS med.....Any one out there that is med free and feeling great?
I was med-free until recently and I still don't do DMDs. MS started in January 2010. I haven't had a relapse since March 2011 (3rd). Felt pretty good until I started Wheldon protocol in September 2012...made me feel worse than ever. I quit after 3.5 months to try something else non-DMD. Back to feeling pretty darn good.
There are lots of people here doing well sans DMDs.
That said, there seems to be higher risk of relapse after discontinuing DMDs. It's funny because my neurologist recommends DMDs whilst in the same breath warns that there is no safe way to stop taking them if there are adverse side effects.
Please pardon my off-topic response.