My neurologist's nurse commented that "short of surgery, there wasn't much that could be done about it."
My neuro wanted to inject steroids directly into the area under CT Scan guidance - I freaked out and said absolutely not! No way was I letting anyone come near my neck with a big fat needle.... I will definitely try massage - I used to be a regular, but stopped when I got these new lesions in my neck as it seemed so fragile (in my mind anyway).
Still, I wouldn't trade those experiences for the lipoatrophy problems seen with Copaxone. Moreover, I can also do without the "injection site tissue necrosis" described in the literature for Betaseron.
I agree, I also have had no serious injection site reactions from Avonex - I had a bit of a "squirter" once, when I must have hit a vein, but even then, I just had a small bruise (though must admit it was a little disconcerting, and stained my bedlinen!); it is just the side effects that impact on me at the moment.
I am a little worried though as I have just read the study on Rebif together with statins and how they think the statins "cancel out" the effect of the interferon - I am on a statin and have been since before I started the Avonex - perhaps that is why my big lesion is still enhancing???...will have to chat to neuro again!
I was also recently given a glider machine like those advertised in the late night TV infomercials. I've used this a few times but find that even 10 minutes on it really wipes me out.
I also had one of those and couldn't manage it for long, then I got a stepper thinking it would help strengthen my legs - couldn't do that either, so now I stick mainly to swimming - I live in a very hot climate (even in winter - doesn't even get cold enough for frost at night!), so I find this works well for me - I need to incorporate stretching with my swimming (used to swim competitively in high school and at university!).
By the way, I was wondering how much ibuprofen you're taking for the side effects?
Just checked my pills now, and I am taking a combination pill - 200mg ibuprofen and 250mg paracetamol in each pill and I take 2 pills every 8 hours - guess I could increase it, hey? The medical community scare the hell out of you will drugs, so thanks, I will take 3 pills and see how it feels. I also inject about lunch time as I tried it at night as it says on the package insert, and I was much worse - fever of 41C etc.
Thanks for sharing so much - I will get back to you in a few weeks re: the massage & increased meds.