AllyB wrote:Thanks so much for the response - i currently have an enhancing lesion with bulging of the spinal cord at C4!
Do you stretch in the morning or evening? Does it help you sleep better?
I have only been on Avonex for a few months and hope it will improve with more time and some help from those like you who have travelled the road.
Have you tried yoga?
My neurologist's nurse commented that "short of surgery, there wasn't much that could be done about it."
Still, I wouldn't trade those experiences for the lipoatrophy problems seen with Copaxone. Moreover, I can also do without the "injection site tissue necrosis" described in the literature for Betaseron.
I was also recently given a glider machine like those advertised in the late night TV infomercials. I've used this a few times but find that even 10 minutes on it really wipes me out.
By the way, I was wondering how much ibuprofen you're taking for the side effects?
AllyB wrote:I will definitely try massage - I used to be a regular, but stopped when I got these new lesions in my neck as it seemed so fragile (in my mind anyway).
I am a little worried though as I have just read the study on Rebif together with statins and how they think the statins "cancel out" the effect of the interferon - I am on a statin and have been since before I started the Avonex - perhaps that is why my big lesion is still enhancing???...will have to chat to neuro again!
about your bulging disk
AllyB wrote: I actually do not take any supplements at all, and am currently researching different regimes - there is so much information out there and so many different opinions on what is best, it is hard to decide, so I have sat on the fence for too long.
I also take acetyl-l-carnitine since it works in conjunction with alpha lipoic acid in the brain.
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