AllyB wrote:Hi there
I have very similar experiences to you - some shots seem better than others, but many are really awful. I have been taking it for about 10 months now, and my neuro recently prescribed baclophen to help me deal with the worsening muscle spasms (there because of the ms, but much worse because of Avonex) and it helps with the ibuprofen, but nothing really takes it away. I have also just started eltroxin as my thyroid function is abnormally low (it was fine before I started treatment) - and I have gained some weight. Interferon can cause hypothyroidism, so this is an essential blood test while on Avonex. I am not ready to give up Avonex - I still hope that the side effects get better, and I have not had a relapse since starting it (I know this could be just the ms, but I was in a really downward spiral before). I also have not had any colds since being on Avonex!
Take care and I hope you get over your cold.
Mechanicallyinclined wrote:I've been on Avonex for 6 -7 years. My side effects aren't as severe as when I first started. Mostly some fever for which tylenol helps. Achiness and tightness for the following day is the bigest thing now.
I have RRMS but honesly I don't think I've had any relapses for some time. Just symptoms better and worse day to day depending on what I do with myself. I don't think I attribute my steadiness to the Avonex. I really think it's more because if the lifestyle shanges I've made by leaving the workforce. I really think stress is one SOB and I can just feel it in my legs when I am stressed.
I'm debating on quitting my Avonex. I hate injecting with a passion and yes I do auto inject. I hate the side effects. Honestly I question if this drug is doing anything for me. I believe the rate of effectiveness on it was only 29 % on chances of reducing relapses. To this point I've stayed reasonably well and that's why I've stayed on the injections to this point.
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