Well, I know I shouldn't do it, because I'm going to get tarred and feathered, but that clinical trial study has got to be one of the biggest wastes of money I've ever seen!
Sure...........give a bunch of people who are not diagnosed with MS some medication (and we now know how many people are even being MISDIAGNOSED as having MS with even MORE clinical signs than this study called for with regard to people "maybe" about to get MS, perhaps, by a long stretch.........), and let's see how many go on to get MS? Uh...........and what are we comparing that to? Did we somehow know to begin with how many of these people WOULD have gotten MS in the first place, even without treatment?
I can't begin to tell you the people who have other conditions who are being diagnosed as having MS! Fibro, brainstem strokes, even just plain isolated stress-related neurological events; migraines, some of which can even be non-painful but cause MS mimic symptoms, AND lesions that show up on an MRI, etc. (all of which are extremely difficult to pin down, also) - the list goes on and on - any one of which can and often IS misdiagnosed as MS! It's getting just too darned easy for a physician to diagnose you as having MS. When in doubt, just say they have MS and be done with it, appears to be a neuro's new mantra.
OR, if a patient won't believe you when you tell them you can't find anything seriously wrong, then tell them they have MS just to make them happy that they can call it something serious. Lately, I've seen NUMEROUS people who want to INSIST they have MS!! And aren't satisfied until they find a physician who WILL tell them that's what they have (whether they really have it or not.)
There's something wrong with this whole picture.
And you know what, Bromley? I took a good hard long look at the topics that were on the agenda for that Actrims Conference, and to tell you the truth, there was NOTHING new on it that all of us here haven't already talked about and knew about OURSELVES months ago!
They should put some of US as speakers on the agenda. Hey, like I said before, my dream vacation is a trip to Greece!