Well if my experience is anything to go by, happy bunnydom will be your state in the future as the ever popular bladder problems were among my laundry list of symptoms. Granted, my symptoms may have gone away on their own without the Campath treatment, but considering my condition before treatment I find that scenario rather unlikely.
I am surprised that you didn’t get an MRI. One of the conditions that needed to be met before acceptance into CAMMS223 was that you had to have at least one active lesion…. unfortunately a condition I met and surpassed with ease. I had the option to sign up to have an MRI done every month for the first six months after the initial treatment and I jumped on it. I’m not a big fan of climbing in the tube but it was well worth it. After my 4th MRI all lesions had become inactive, and after the 6th most had shrunk in size with some of the smaller ones disappearing altogether.
We also have to take four tests (along with the standard neurological exam) every three months. The tests are to measure our increase/ decrease relative to previous scores. These include:
The speed walk- we’re timed as to how quickly we can cover a set distance, roughly 10 yards.
The incredible fading eye chart- weird eye chart where instead of getting
smaller as you move down the chart, the letters get fainter, and rather than black letters on a white background, they’re on a tan background with random black splotches sprinkled throughout.
The peg test- you have to grab plastic pegs one at a time out of a small plastic bowl and place them in a small grid of holes then remove them one at a time and put them back in the bowl. The pegs are very smooth and feel slippery to me. And we won’t talk about the time that I was trying to pick up the speed a bit and managed to knock most to the pegs out of the bowl and all over the table. What can I say? Grace and dexterity have never been two of my better attributes. I guess my coaches back in school had good reasons for making me an offensive lineman.
The hideous “math test”- basically the nurse puts in a tape and a narrator
begins to read off numbers. Take the sequence 5…7…3…4. Basically you have to add the spoken number to the previous number in the sequence. The number 5 is spoken, then 7. You add 5 and 7 in your head and say 12 out loud. Then the 3 is spoken by the narrator and you have to add that to the 7 in your head and say 10 out loud. Then comes the 4 and you have to add the 3 to it ad say 7 out loud. It’s all very basic grade school addition, but there are only two or three seconds between each number on the tape, and trying to remember the last number in the sequence while doing the addition in your head and speaking the sum out loud can get rather confusing. The whole test lasts only two or three minutes, but it seems like an eternity. As of yet only one person at my clinic has made it through the entire sequence with no errors…. at my last check up I made six mistakes.
I gather that the fact that I would have done poorly on this test
prior to MS is of no matter to the study sponsors, just the fact that I don't get progressivly worse at it is good enough. It does get frustrating though.
Trust me Raven, you're not missing anything by not being given the tests.
And I hope that in the not to distant future you'll be able to head out into public and not scour wherever you are for the nearest restroom just in case