I have nothing to compare Campath usage to. I'm in the branch for the newly diagnosed and had my second year infusion not too far back.
After the first infusion in February 2009 I felt not so great by the end of the week, but that only lasted a few days. Then I was sluggish for a few weeks, not more than a month. Little bit of fuzzy vision in my usual ONN eye days just after infusion, but not an official episode.
After a few months I started working out again. I felt like I was on speed with the amount of stuff I would get done in a day...like a normal person I suppose, but my energy level was so much higher that it was really noticeable. No longer was I ending my day saying things like "the floors will still be dirty tomorrow!" or addressing some other minor thing on my list of stuff to do that so often as a person with MS just doesn't get done. I'm on no meds. Zero. I have a standing order of pain meds and some narcolepsy drug for fatigue, but I didn't use them after Campath.
It was a really stressful and craptastic year. My Dad died in October. Money was crazy tight as my husband was finishing up grad school. We've got 2 kids, jr. high age...need I say more?! But get this - not one episode, the entire year!
In January I started feeling tired. Nothing in my life had changed but I was feeling like there weren't enough hours in the day to get everything done. Fuzzy brained, almost like a hangover type of feeling! Working out didn't give me an energy buzz, instead it sapped me for the rest of the day.
February rolls around and I had my second infusion. 3 days, nicer that time around. It was easier. Within 2 weeks I was feeling heaps more energetic than January, running again, but still feeling like I was coming off the flu. No vision issues with the infusion. In April I ran a half marathon. Super slow...and I walked...but hey, I got out there & did it!
Third week of May a portion of my foot was numb. I can still walk unaided. Heck, I still run...but I have to watch it cause as I get tired the outer portion that has the numbness droops a bit and it doesn't always leave the ground. Sorta slides and I might stumble or nearly fall.
When I went in for the monthly blood draw my gait looked great/normal, but I didn't do so hot on the poking pin test. So they called it an episode. If this is how MS is going to role with Campath - I'll gladly take it.
It's hot here in Tucson, AZ. If I overheat, cycling 50 + miles with my husband for the Bike MS gig, or run at a warmer time of day, vision gets a bit blurry but not everytime. Pre Campath it always did, sometimes just getting the mail during the heat of the day my eye would be shot for a few hours. If I have to work out to get symptoms - I'll take it!
I'm sorry I haven't updated. I'm only on now because my younger sister just got diagnosed and I was looking into something she said about my aunt with MS. Thought I'd check in with the Campath Crew!
Hope everyone does well!