It turned out to be an attack, with two new leasions. I understand that the stress of lemtrada treatment can set off MS relapses, and that it is not that uncommon. Neuro said that it did not mean that the treatment was unsuccessful, as the lemtrada takes time to work, it does not kill off the white bloodcells straight away.
The treatment has been very rough, its been hard work, hard on the body, hard on the mind.
Well it is irreversible, i can never get it back out of my body. All I can do is to sit back and wait go iin for my second treatment in about a year, just wait for long term remission. The long term remission we are all hoping for
Why did you need a third infusion? Where I live, and in most of Europe it seems to be standard procedure with just two treatments, a third one is only done if there is new leasions on MRI, but I am not sure about this. Bur they did say most patients do not need third treatment.
But must say it has been an ordeal, its been rough so far. The fact that I needed cortison to treat the attack three days after finishing lemtrada treatment, where they had all ready given med lots of steroids to treat the lemtrada side effects probably made it harder on the body. a course of steroids in its self is quite a treatment. I had 7 infusions of that in two weeks.
Things are looking up though, it is all easing a bit off.
It is good to hear that you have been MS symptom free, and that you are in long term remission, that is the most important thing. I like to hear all about positive stories.
<div>I have lived with ms for 8 years. The last year has been hell, I've gone from shite to even worse every single month, until my liberation in May. </div>