I posted day-by-day experiences with the Campath infusions (with pictures) on www.myspace.com/chilliwacklove
in my blog there.
As Sugarmomma mentioned, I do continue to have a red itchy warm rash most days, starting in the morning. Sometimes it clears up on its own but I usually take an anti-histamine like xyzal or clarinex. At first I thought it was food related but time has shown it appears whether I've eaten or not & none of the usual-suspect variables seem to affect it (wheat, dairy).
I'm having a really rough time walking; worse than ever. I have neuropathic pain in my left eye alot. I'm slowly trying to take walks in the neighborhood & get moving anyway. I really didn't want to this evening; tired from a long day- but I did it anyway and actually made it a bit further than usual without a rest. But then, when that critical energy level was depleted, the legs shut down and no longer functioned, as usual.
I have caught 2 different types of Upper Respiratory type infections in 15 days; but I work in healthcare and have 2 children; so that's not really surprising! However, up until the Campath Infusion, I had avoided the cold and flu season completely.
On a positive note, I have a decrease in night-time spasticity and hand neuropathy.
I realize 3 weeks really isn't enough time to declare any real patterns or results, but it's hard not to take every little feeling and place meaning to it. The big picture is important, that I'll probably get better, but getting through the first 3 months is likely to be rough. We get our lab results back this week, to check platelets & thyroid function, among other things.
Phase 3 trials are recruiting throughout US/Canada. Hope this helps those thinking about joining!