I can run!

A board to discuss the soon-to-be released drug Campath as a treatment for Multiple Sclerosis

Postby freiguy » Tue Jul 22, 2008 8:23 am

Thanks for the info. I guess for those of us who are part of the campath brotherhood it will be a wait and see thing.
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Postby Jaded » Tue Jul 22, 2008 3:00 pm

Hi raven

That's brilliant news about your run! Amazing the things you miss when you realise you can no longer do them.

I did used to be a runner but gave it up due to a knee injury - what a sissy I was!

Please do continue to tell us about your progress. It gives us hope. Good luck with the training :wink:

I have spinal lesions like yourself, so my existing/potential deficits are similar. I hope campath is approved soon for all of us - and before I get to the latter stages of rrms, whatever that is deemed to be!!!!!!!!!!

best wishes

J.
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Postby freiguy » Tue Jul 22, 2008 4:25 pm

Jaded,
I will post here as often as I can with updates from my experience. I am new to the treatment - only completing the first round of infusions last week. I have a rather clean brain mri with the activity being two lesions on my spine. My problems revolved around numbnessand tingling in the feet/lower legs, bladder issues, and the absolute worst symptom for me...vertigo. I am also new to the MS diagnosis since I found out about it in March/April of this year. Good luck with everything.
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Postby Jaded » Wed Jul 23, 2008 6:48 am

Thank you freiguy.

I wish you well with your treatment and pray you have caught it in time to avoid any permanent damage.

I have some residual damage in my leg, although I try to exercise to keep the muscles that I can feel in good shape, it can be limiting........even as far as walking is concerned.

best wishes and thank you all for your updates.

J.
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Postby CureOrBust » Sun Sep 28, 2008 5:15 am

How is your running / jogging going? have you been practising? improving?
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Postby queenie » Thu Jun 04, 2009 7:31 pm

For all you old-timers, I am a "new timer. Just got the Campath in April. Feeling good, but don't know what to think about success.
Would love to hear your continued experiences...
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Postby sara33 » Sun Jun 21, 2009 11:14 am

this is great news for you. i start tomorrow, and i hope i have such results. my main problem is my eyes and fatigue.
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Postby raven » Sun Sep 26, 2010 1:24 pm

Cure,

I must admit I haven't been practising. It's strange but MS has been relegated to history for me. I still have deficits, which I can deal with day to day, they do not stop me living a full life and working way too hard than is probably good for me.

I'm sorry to all those asking for updates from the 'old-timers'. I suspect that like me, many do not visit ThisIsMS with anything like the frequency we used to (Bromley, you still lurking around???). MS just isn't the spectre of doom that it once was.

Still no relapses since treatment.

Take care all.

Robin
Do not go gentle into that good night. Rage, rage against the dying of the light.
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Postby Lyon » Sun Sep 26, 2010 2:28 pm

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Postby CureOrBust » Sun Sep 26, 2010 5:12 pm

raven wrote:Still no relapses since treatment.
Good to hear.
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Postby Lyon » Sun Sep 26, 2010 7:10 pm

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Postby Jaded » Fri Oct 01, 2010 10:38 am

Better late than never that's what I say Lyon!

That's great news raven. I have had some deterioration and if campath is available it would be the drug of choice for me.

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