CureOrBust wrote:I am trying to get Campath off-label. The thing that worries me, even though I am still RRMS, I have had symptoms for over 13 years, with a diagnosis about 3 years ago.
Most of the people I have seen here who have received it, have been usually considerably less time with this disease, but more aggresive. I have read the studies that show its more effective with people in early RRMS, and I don't think I explicitly fall into that group. So, I am wondering, whom out-there, has had Campath while still RRMS, but has been symptomatic for a long time? ie >5 years.
I am EDSS of about 3.5 (after 13 years), and I am definitely currently SLOWLY recovering symptomatically, so I think I have the potential to respond like someone who is early RRMS.
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