Doctor Shop!!! til you find one that suits you, answers your questions, and feels like they care. It will take alot of time & energy but you gotta fight for yourself!
The internet is full of information to sort through & there's even tons of stories campath now. (yes, the study will pay for everything. no co-pays & lots of free testing)
a good website to look for doctors, I found 3 years ago after being diagnosed, living in a strange place is:
I found a decent neuro in Washington state to start with. Then when I moved back to Florida, I went to the USF neuro ( because a friend recommended it, but he's also on this list)
Interview your practitioners and don't settle or feel obligated to anyone but yourself