This Is MS Multiple Sclerosis Community: Knowledge & Support
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Well the fine folks at Genzyme have given me the boot. I am apparently not treatment naive because of the 28 days I was in the open label with Tovaxin and I am not eligible for Care 2 because I wasn't on treatment??? The clinical Neuro went to bat for me and still, NO. The only thing more frustrating than MS is trying to find a useful treatment for it. I would like to once again thank Opexa (Tovaxin) for all their help in placing the appropriate landmines in my treatment options path.
AIN? Is that the off label site Mike talked about? Because I was privy to the chain off command avenues that the Neuro here took and I don't think there is anyone higher in the Genzyme world to OK me in the trial. Thanks for your help. Where are you in your treatment time line?
Wow, I just looked at your post again and saw that your treatment dates are......now. God Bless and good luck!
I was treatment naive going into tovaxin. Got placebo then got 4 of 5 injections during the extension study. I got into care MS II. If you came here you'd probably get in if you met other requirements like a documented exacerbation in the last 12 mos. Maybe ultimately it's up to the trial site. Who knows....
The only thing I can come up with is a recollection of a very brief conversation I had with my site when this all started. I believe there are different requirements for private vs. public sites. My site is at the University of New Mexico Hospital and that may explain a lot. I suppose I'll get on the phone again....uhggggg.