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A board to discuss the soon-to-be released drug Campath as a treatment for Multiple Sclerosis

Postby patientx » Wed Sep 23, 2009 6:35 am

Tiffany wrote:Can't really comment on Campath as my views are very biased but hope your keeping well.

Jules (Robins other half)


Biased in a good way, I assume?
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Postby raven » Wed Sep 23, 2009 6:36 am

Actually Alemtuzumab is the technical name, Campath is the brand name which derives from the originators of the drug Cambridge Pathology. Nothing more sinister than that. (Despite the protestations of my darling wife...)

Robin
Do not go gentle into that good night. Rage, rage against the dying of the light.
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Postby Tiffany » Wed Sep 23, 2009 6:52 am

Patientx wrote
Biased in a good way, I assume?


Yes very much so :)


Raven wrote
(Despite the protestations of my darling wife...)


:oops: :lol:

Jules
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Postby Lyon » Wed Sep 23, 2009 1:35 pm

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Last edited by Lyon on Sat Nov 26, 2011 10:12 am, edited 1 time in total.
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Postby queenie » Sun Sep 27, 2009 8:01 pm

I am sooo happy to hear from someone 3+_years in!!!
I am at 5 months, but feel better than I have in 20 years!
I wonder what happens after the year 2 infusions.
If they offer them yearly, I AM IN!!!
This is the best news I have had in some time!
Please respond, as I need incouragement. I have found that this site is not very active, so far as on-going talk and incouragement.
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Postby raven » Thu Oct 01, 2009 10:52 am

Hi Queenie

I'm glad you feel well after the treatment. As far as re-treatment goes I believe after the second infusion they will respond based upon need. If you show no signs of disease activity there is no need to retreat with what is let's face it, a pretty serious drug.

I gues us old timers don't visit that often because we have made our decision and are busily getting on with life. MS to me is a minor irritant that will not go away but also shows no sign of getting worse.

I am glad that I made the decision that I did and really hope that you and any others who decide to try Campath get the results that I have had.

Best wishes
Robin
Do not go gentle into that good night. Rage, rage against the dying of the light.
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Postby queenie » Wed Oct 07, 2009 7:54 pm

Yes, they check wbc counts monthly, as well as a slew of other things. My wbc has slowly been climbing, finally breaking 3 at 5 months.
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