Sorry guys, I've moved on to CCSVI !!
I mean, that's where I've moved my proverbial eggs to.
I think campath slowed down a wicked downward spiral but there's something out here that's keeping me down. Or I mean my wbc attack ON. whatever i don't know, but campath's not enough. i have to admit my diet is crap...but beyond that i don't know what else to do to to get better.
I accepted, bought a fancy electric scooter. I go to Physical Therapy. I kept my job.. (so far)
I get my blood drawn every month, answer the electronic ITP survey, go in to the neuro office every 3 months to be poked and prodded by two different guys.
I love my neuro team and they take the best care of me!!
I think I'll take the "free" third dose, since we know it will be the low dose. i haven't had a bad year of side effects like the first year.
Just wanted to give you guys something new to read about
the ccsvi threads i've been lurking on got real sad the last few days, as word spread of this new great cure, and people so desperately want to try it, i hear they can't even get calls back from the 3-4 teams doing it (So Cal, Canada, Italy, and Poland)
I joined the "club" after reading @ it, checking with my doctor, who apparently is very interested in it. so if anyone can do it, Stan Krolczyk, D.O. R.P.h. @USF can !!! (he has been known to do off label campath, and other crazy stuff, case by case )
no news is good news, but i felt like i owed the forum an update!
all the best to you guys!