MSRC launches new CCSVI section on website

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby MSUK » Sun Jan 31, 2010 8:49 am

Thanks Squesky Cat, that's a good idea.

I will add it to the "To Do" list.

Can I suggest if anyone wants to suggest further pages etc, or would like to help provide information for the pages that they contact me at MSRC on squiffy@msrc.co.uk so that we do not clog up the forum posts etc?

cheers

squiffs :P
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Postby Billmeik » Sun Jan 31, 2010 9:13 am

ITEM Two people have died while being treated


no one died of a stroke and another had the stents move down his veine to the heart, requiring open heart surgery.

ITEM What does Zamboni know about veins. He's a psychiatrist.
Not.

ITEM Thus far, Zamboni has only treated his wife.
Not.

ITEM Testing in Berlin has not found any evidence of CCSVI

True, but there is no evidence they have any idea what they're doingl


I'm not sure if these claims from total ignorance need to be dignified with a response.
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Postby MSUK » Sun Jan 31, 2010 9:17 am

Bill, I think, squeakycat was using those as examples of WHY there needs to be a CCSVI FAQ, I do not think they were stating those as fact, but I may be wrong.....
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Postby Squeakycat » Sun Jan 31, 2010 10:31 am

They are just examples, but they were ones that I had read on the site within the past hour.

Some of these are so far out that it probably wouldn't make sense to dignify them with a response.

The "two people have already died" though seems like a fairly serious charge and one we've seen raised several times.

Perhaps a broader approach makes sense though.

ITEM Zamboni is a flake. (Zamboni is wrong.)

RESPONSE Dr. Zamboni has published 8 papers in major, international, peer-reviewed medical journals and made presentations at a number of major international medical conferences. Other researchers including Stanford, Georgetown, Jacobson Neurological Institute, Jena, Frankfurt, et cetera have begun the process of testing his results. His critics just whine. :) (Or: We are waiting for his critics to publish their comments in peer-reviewed journals and to present their own research.)

ITEM Almost all neurologists agree that MS is an auto-immune disease. It couldn't have anything to do with cerebrospinal veins

RESPONSE Science is not about consensus. It is about constantly challenging theories and replacing them with new ones. The CCSVI thesis does not preclude an auto-immune explanation for MS. It may in fact be an insight into the trigger for an auto-immune response which is not currently known.

Again, these are just possible examples. Nothing sacred about any thing I ever write.
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Postby MSUK » Mon Feb 01, 2010 2:29 am

I wondered if some of the people on here who had already undergone CCSVI scanning and/or treatment would like to add to the CCSVI Treatment - Patient Comments page?

If so, please feel free to email me on squiffy@msrc.co.uk

cheers

squiffs :)
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Quotes on CCSVI

Postby MSUK » Mon Feb 01, 2010 3:35 am

I have added a Quotes on CCSVI page to the CCSVI section. Putting it together highlighted to me the diverse and opposing opinions which are becoming apparent as this subject gathers pace................... http://www.msrc.co.uk/index.cfm?fuseact ... ageid=2959
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