mohzi wrote: In December I had a lengthy conversation with a top MS Specialist. In fact, he was heavily involved in the Bologne Conference.
In December he told me their were two deaths so far. I corrected him and said, there were none. A lady died in Phoenix after stents, but the Drs. said it was not related. And one person had a problem with a stent slipping that required open heart surgery.
He replied and was very serious, "There were two deaths, I talk to a lot of people all over the world involved." His whole take on CCSVI, was that a lot more testing needs to be done...
This is interesting to me b/c I spoke to one of my neuros last week and he was quite dismissive of CCSVI (as expected), but also threw out the "2 death" figure. He wasn't plugged in w/ the worldwide CCSVI movement, but seemed to have been in the loop w/ Stanford neuros. It seemed to be the number being thrown around. I'm curious how wide-spread that rumor is.
Also, I know stented veins aren't common, but they've been done. Isn't there a mortality rate out there already, or something close? Does anyone know?
Also, far from wanting testing, my guy expressed anger and frustration that money was being wasted on trials for CCSVI. Oh dear.