Catfreak's Update

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Johnson » Sat Apr 03, 2010 10:48 pm

catfreak, I am so glad to read that you are feeling so well. I've been humming, and hawing, over whether to start my tomatoes and such, lest I not be able to care for them. Do you feel up to coming up to Vancouver to help out? Grin.
My name is not really Johnson. MSed up since 1993
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Postby catfreak » Sun Apr 04, 2010 6:49 am

Opera,

I had my last Tysabri treatment Feb 1st. I got sick again for a whole week again. I did not have a treatment in March or April and no whole week of being sickness. So I am off of Ty and glad I am.

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby magoo » Sun Apr 04, 2010 7:11 am

Cat,
Great to hear about how well you are doing! I just planted my garden too and I am thrilled to be able to take care of it now that I feel so much better. May you have even better days ahead!!!!!!!
Rhonda
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby Opera » Sun Apr 04, 2010 6:07 pm

Catfreak

Thanks for your post and sharing the good news with us. I trust we will hear of ongoing improvment.

I feel very happy for you.
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Postby catfreak » Tue May 18, 2010 10:41 am

I went to my Neuro today. He heard Dr Zamboni speak in Toronto and he was excited about how well I am doing. I am still his only stent patient but he has a patient going to Huntsville, AL to a Vascular Surgeon for angioplasty. He believes that patients need to get tested and treated for venous blockage first, because if we go at this with MS first we are going to have the resistance of the neuro community and big pharma (my words) that want the trials or don't want to be a part of CCSVI. I am so glad he is openminded.

I don't have to go back until after my 1 year checkup at Stanford this fall.

So do what Joan says "GO LOCAL and get treated for venous blockages!!!
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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Postby magoo » Tue May 18, 2010 11:16 am

Great news Cat! How are you doing? We should plan our follow-ups with a few others and have a party!
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby Liber8 » Tue May 18, 2010 11:33 am

@CATFREAK

This has nothing to do with treatment and the like. I just have to laugh every time I see your AV.
RR DX 1993
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Postby Liber8 » Tue May 18, 2010 11:38 am

Oh yeah, I noticed that people seem to have quieted down some on here about how they are doig 3,6,9,12 months after their procedure. Of course I may be looking in the wrong spot too.

I don't want to see the uproar fade out. If you get the chance to continue to spread the word of how you are doing please do. It would be a huge favor for all of us waiting and all of those that don't know of this possibility.

Thanks
RR DX 1993
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Postby thornyrose76 » Tue May 18, 2010 11:57 am

I'll second that! :D
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Postby CRHInv » Tue May 18, 2010 12:26 pm

Hi Cat! It really is happening. It is so exciting! I am glad you are feeling well! Take care!

Liber8 and Thorny - I will put an update out soon. We don't want anyone to think we disappeared for the wrong reasons, most of us just got busy with other things. I still look around out here, I just don't post much. Soon, really!
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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Postby prairiegirl » Tue May 18, 2010 4:14 pm

Liber8 wrote:
If you get the chance to continue to spread the word of how you are doing please do. It would be a huge favor for all of us waiting and all of those that don't know of this possibility.



I agree-- great to hear updates. Thanks for posting, catfreak, and will look forward to hearing from others (like CRHInv) :D!
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Postby thornyrose76 » Tue May 18, 2010 7:00 pm

CRHInv wrote:Hi Cat! It really is happening. It is so exciting! I am glad you are feeling well! Take care!

Liber8 and Thorny - I will put an update out soon. We don't want anyone to think we disappeared for the wrong reasons, most of us just got busy with other things. I still look around out here, I just don't post much. Soon, really!


Look forward to it. Carpe diem! Cease the day! :D
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Postby prairiegirl » Tue May 18, 2010 7:59 pm

@thornyrose
Pretty sure you meant "seize the day", instead of "cease" (which would not be a good thing :D :D !
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Postby thornyrose76 » Wed May 19, 2010 2:17 pm

prairiegirl wrote:@thornyrose
Pretty sure you meant "seize the day", instead of "cease" (which would not be a good thing :D :D !

You are right lol lol I should know better on that one with my education, guess I can blame it on the brain lesions!!!!! :oops: :D
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