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PostPosted: Wed Feb 03, 2010 11:05 pm 
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Hi,
I had my op on february the 2nd. It was balooning of the left vein. Things are...ehmm...stable? I didn't notice any significant improvement so far... I thought everything would change quickly. I thought I would notice a change just the next day, and I was trying hard to find anything...
I think nothing really changed so far, and I am a bit upset because of that...

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Polish, 30yrs, dx 2000 RRMS, EDSS 5.

liberated in february the 2nd 2010:). Currently on double blind clinical trial with Avonex/Daclizumab.


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PostPosted: Wed Feb 03, 2010 11:13 pm 
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Annbbe, Congratulations and thank you for your pioneering spirit.. I am no expert..and I have yet to receive the procedure...but everything I've read tells me.. you will benefit.. even in the form of cessation of progression.. ! Try to hang in there.. keep us posted... :)


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PostPosted: Thu Feb 04, 2010 1:14 am 
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It s always good to hear both sides of the story, not only the good news.
On the other hand i strongly believe that you ll get better eventually. Give it some time. You have ms for ten years after all. Your body need time to heal.

Keep the rest of us posted please.


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PostPosted: Thu Feb 04, 2010 2:32 am 
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hey, something is changing...:) my left hand is getting stronger! i see it while writing on my laptop:)

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Polish, 30yrs, dx 2000 RRMS, EDSS 5.

liberated in february the 2nd 2010:). Currently on double blind clinical trial with Avonex/Daclizumab.


Last edited by annbbe on Thu Feb 04, 2010 7:44 am, edited 1 time in total.

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PostPosted: Thu Feb 04, 2010 2:35 am 
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SOMETHING TELLS ME THERE IS A LOT MORE TO COME ;)

HANG IN THERE.


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PostPosted: Thu Feb 04, 2010 2:47 am 
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Hi annbe,

good to hear it all went well
your left hand getting stronger is a great sign
i hope you wil get lots of further improvements :D

please keep us posted


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PostPosted: Thu Feb 04, 2010 3:42 am 
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Hi Annbe
My improvements this time have been slower and less dramatic but there are definitely improvements. Its taken a long time to get as bad as I was so I don't mind waiting for the improvements.
Soon you'll be impatient to wake up so you can see the changes a new day brings.
Happy days! Keep us posted.


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PostPosted: Thu Feb 04, 2010 5:54 am 
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Congrats Annbbe,

I know that the improvements will come. Hope you are feeling ok?

Best Wishes

Claire


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PostPosted: Thu Feb 04, 2010 8:10 am 
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Hi Ann,
See I told you to give it some time and good things will happen :D Think positive and everything will work out just fine for you. You are now liberated and that what counts the most!
All the best to you and please keep us all in the loop.


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PostPosted: Thu Feb 04, 2010 9:21 am 
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Go Ann! GO!!


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PostPosted: Thu Feb 04, 2010 9:32 am 
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Feel better soon, ann. . . and I bet you will! Something was wrong and it was fixed so things will improve!
lucky you!


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PostPosted: Thu Feb 04, 2010 9:32 am 
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you will get better, and frankly, for me, stabilizing is just as good as getting better. but i'm sure you'll get better, we are all anxious and want to get better right away but it doesn't work that way.
keep us up to date.


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PostPosted: Thu Feb 04, 2010 1:29 pm 
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Hi Annbe

So glad for you improvements are starting,this is good

Pam :)


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PostPosted: Sat Feb 06, 2010 3:52 am 
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Hi! Everything is going slowly, but i see that something good is happening
e.g. i noticed today that i walk faster on the stairs (you know- those left leg-right leg movements). It lasted just a while. When I was walking upstairs once again it was more slowly. But I think things are going in a good way:)


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PostPosted: Sat Feb 06, 2010 4:03 am 
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hi annbbe,

great to hear of your early improvements :D
sure there will be lots more !!

best wishes


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