This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi Everyone,

Hope you can help. I have been watching this forum with avid interest without posting for a few weeks now. All of a sudden I feel that I can start to take action. I read yesterday someone's suggested letter to Vascular Surgeons and IRs but I can't find it this morning. Does anyone remember posting/reading it?

I live in the UK and would love to hear if anyone has had any success accessing services here. I don't think I'm brave enough to travel to Poland.

Waiting with anticipation!

Hi Sweetpea,

Get in touch with the group that run ccsvi.co.uk.

They are making great progress.

Claire

Here's the thread you were looking for -
http://www.thisisms.com/ftopict-9775.html

Yes, yes that is exactly the letter I meant. Thank you for posting it!

Wow, thanks Claire! Didn't know about that site. Looks really useful.

Love this place!!

_________________
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5

Hi Mutley,

Hope you and the family are well!

They are doing some great stuff and I really want to get involved and help out. They are looking for voluteers.

Unfortunately, I'm in the middle of a steroid course and feeling a bit down, and I must get to Poland next week!

But I will be offering my help once I'm back on top (ish).

Claire