Standard Letter

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Standard Letter

Postby sweetpea » Thu Feb 04, 2010 3:17 am

Hi Everyone,

Hope you can help. I have been watching this forum with avid interest without posting for a few weeks now. All of a sudden I feel that I can start to take action. I read yesterday someone's suggested letter to Vascular Surgeons and IRs but I can't find it this morning. Does anyone remember posting/reading it?

I live in the UK and would love to hear if anyone has had any success accessing services here. I don't think I'm brave enough to travel to Poland.

Waiting with anticipation!
:lol:
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Postby ClaireParry » Thu Feb 04, 2010 5:56 am

Hi Sweetpea,

Get in touch with the group that run ccsvi.co.uk.

They are making great progress.

Claire
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Postby jay123 » Thu Feb 04, 2010 7:12 am

Here's the thread you were looking for -
http://www.thisisms.com/ftopict-9775.html
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Postby sweetpea » Thu Feb 04, 2010 8:41 am

Yes, yes that is exactly the letter I meant. Thank you for posting it!
:lol:
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Postby Mutley » Thu Feb 04, 2010 1:49 pm

ClaireParry wrote:Hi Sweetpea,

Get in touch with the group that run ccsvi.co.uk.

They are making great progress.

Claire


Wow, thanks Claire! Didn't know about that site. Looks really useful.

Love this place!!
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
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Postby ClaireParry » Thu Feb 04, 2010 2:07 pm

Hi Mutley,

Hope you and the family are well!

They are doing some great stuff and I really want to get involved and help out. They are looking for voluteers.

Unfortunately, I'm in the middle of a steroid course and feeling a bit down, and I must get to Poland next week!

But I will be offering my help once I'm back on top (ish).

Claire
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