Buffalo Newsletter

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Buffalo Newsletter

Postby MS_Jess » Thu Feb 04, 2010 3:39 pm

Hi, I'm a newbie, but thought this warranted a new topic to make sure it isn't buried:

http://www.bnac.net/wp-content/uploads/ ... 4-2010.pdf
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Postby zap » Thu Feb 04, 2010 3:52 pm

AWESOME.
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Postby PCakes » Thu Feb 04, 2010 4:15 pm

WOW!
Good job Jess!!
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Postby dunkempt » Thu Feb 04, 2010 4:26 pm

Although they say, "We cannot recommend endovascular treatment before we fully understand the safety of any approach we may propose," following their CCSVI diagnostics "patients and their neurologists will be able to discuss appropriate next steps"

Which next step would surely mean considering ... endovascular treatment.

Game, set, and match, I think.
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Postby GuRu » Thu Feb 04, 2010 4:27 pm

:D GREAT :D
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Postby newfie-girl » Thu Feb 04, 2010 4:37 pm

OMG!!!!!!!! It's going to happen for us, all the hard work of our pioneers paid off and God Bless Dr. Zambone, can't type anynore, tears are filling up my eyes and I can't see the screen............
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Postby Cece » Thu Feb 04, 2010 5:00 pm

Wow! Very encouraging! So what could they mean about additional questions raised that will be addressed in phase 2 of the CTEVD study? I think I am out of wait for these study results!!! :)
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Postby fogdweller » Thu Feb 04, 2010 5:03 pm

Though no results announced, the tone of newsletter SCREAMS success A new machine invented and developed for this disorder; further expanded studies, negotiations begun with the insurnace companies to cover this (how can you do that without positive results???) all the things that they were able to say in the nature of an exciting new direction for MS reaserch, the expanded research, the ,"I hope to soon be able to redcommend intravascular treatment" etc,. etc!!!

OMG, this couldn't be more exciting !!!!
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Postby fogdweller » Thu Feb 04, 2010 5:04 pm

Cheerleader, how excited are you?? many, many thanks for all your efforts.
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Postby ozarkcanoer » Thu Feb 04, 2010 5:11 pm

MS_Jess !!!! This is the best news ever !!!!!!!!!!!!! I'm so glad you posted this !!!

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Postby Cece » Thu Feb 04, 2010 5:28 pm

Also wondering what their treatment is that's different from both Zamboni and Dake's!
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Postby AlmostClever » Thu Feb 04, 2010 5:40 pm

Sounds like a complete success! Can't wait to fire my nerdo -I mean nuero! hahahaha!

Zamboni gets the Nobel easily with this!
If you can't explain it simply, you don't understand it well enough. - Al Einstein
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Postby Bobbi » Thu Feb 04, 2010 5:50 pm

Wow MS_Jess!
Hot off the press ..... thanks for the link.
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Postby TFau » Thu Feb 04, 2010 6:23 pm

Wow - I can't believe how positive this newsletter is! It's amazing!
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Postby annad » Thu Feb 04, 2010 6:31 pm

Like the song says. . . . I've got a feeling. . . .
Great news!
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