Don't know what to do now about my trip to Poland!!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Don't know what to do now about my trip to Poland!!

Postby ClaireParry » Fri Feb 05, 2010 5:54 am

On Tuesday I received 2 emails, one from Dr Simka changing the time of my doppler to accommodate his trip back from Canada and another from Marta telling me it had been cancelled. I've asked for urgent clarification but nothing yet.

My gut instinct is that Dr Simka is right and that one hand doesn't know what the other is doing??

I don't know now, it's so badly organised.......
User avatar
ClaireParry
Family Elder
 
Posts: 218
Joined: Tue Oct 20, 2009 3:00 pm
Location: Worcestershire, U.K

Advertisement

Postby ClaireParry » Fri Feb 05, 2010 7:09 am

Quick update - I searched TiMS for a number for Dr S which I found and phoned only to call the poor man at home!!

He was very gracious and I was very apologetic.

He confirmed he would be there and I feel much better!!! :D :D :D :D
User avatar
ClaireParry
Family Elder
 
Posts: 218
Joined: Tue Oct 20, 2009 3:00 pm
Location: Worcestershire, U.K

Postby Richardk » Fri Feb 05, 2010 10:26 am

ClaireParry wrote:Quick update - I searched TiMS for a number for Dr S which I found and phoned only to call the poor man at home!!

He was very gracious and I was very apologetic.

He confirmed he would be there and I feel much better!!! :D :D :D :D


Claire

I'm glad your date was confirmed, and I hope to see you there. In confirming my date for the treatment, I also phoned Dr S, not realising I was using his home number, and he was very polite.

Richard
User avatar
Richardk
Family Member
 
Posts: 59
Joined: Mon Dec 07, 2009 4:00 pm
Location: Vancouver BC

Postby CureIous » Fri Feb 05, 2010 10:47 am

Yes, and wherever that post is with his personal number, it should be deleted immediately, cause now it's been noted, he can expect another 1,000 home phone calls in short order after people get done searching the site.

Mark
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
User avatar
CureIous
Family Elder
 
Posts: 1200
Joined: Tue Jul 14, 2009 3:00 pm
Location: Riverside, CA

Postby ClaireParry » Fri Feb 05, 2010 12:08 pm

I agree. It should. It was apost by Edser very early on. I will track it again and ask the mods to delete it.
User avatar
ClaireParry
Family Elder
 
Posts: 218
Joined: Tue Oct 20, 2009 3:00 pm
Location: Worcestershire, U.K

Postby ClaireParry » Fri Feb 05, 2010 12:09 pm

RuchardK - it will be great to see some TiMs people. Hope we catch up.
User avatar
ClaireParry
Family Elder
 
Posts: 218
Joined: Tue Oct 20, 2009 3:00 pm
Location: Worcestershire, U.K

Postby pgm1 » Fri Feb 05, 2010 12:47 pm

Hi

When you spoke to Dr.Simka did maybe say that he will confirm appointments?and are you all getting the first price list?

Pam :)
User avatar
pgm1
Family Member
 
Posts: 73
Joined: Mon Nov 23, 2009 4:00 pm
Location: Canada

Postby ClaireParry » Fri Feb 05, 2010 12:51 pm

I'm sorry Pam. I was so embarassed re ringing him at home that I just confirmed that it WASN'T all cancelled and got off the phone as quick as I could, apologising profusely all the way.

Claire
User avatar
ClaireParry
Family Elder
 
Posts: 218
Joined: Tue Oct 20, 2009 3:00 pm
Location: Worcestershire, U.K

Postby pgm1 » Fri Feb 05, 2010 12:55 pm

Hi ClaireParry

I can only imagine how you felt but i think Dr.Simka would understand

Pam :)
User avatar
pgm1
Family Member
 
Posts: 73
Joined: Mon Nov 23, 2009 4:00 pm
Location: Canada

Postby jimmylegs » Fri Feb 05, 2010 1:34 pm

if someone will supply the link to that post here i'll edit out the number. if edser reads this first please just remove the number from the post, thanks :)
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com
User avatar
jimmylegs
Volunteer Moderator
 
Posts: 8944
Joined: Sat Mar 11, 2006 4:00 pm

Marian's number

Postby fiddler » Fri Feb 05, 2010 1:52 pm

Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
User avatar
fiddler
Family Elder
 
Posts: 398
Joined: Wed Dec 02, 2009 4:00 pm
Location: Fredericton, Canada

Postby jimmylegs » Fri Feb 05, 2010 1:56 pm

done
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com
User avatar
jimmylegs
Volunteer Moderator
 
Posts: 8944
Joined: Sat Mar 11, 2006 4:00 pm

Postby Richardk » Fri Feb 05, 2010 3:40 pm

CureIous wrote:Yes, and wherever that post is with his personal number, it should be deleted immediately, cause now it's been noted, he can expect another 1,000 home phone calls in short order after people get done searching the site.

Mark


Not so quick...please refer to my PM

Richard
User avatar
Richardk
Family Member
 
Posts: 59
Joined: Mon Dec 07, 2009 4:00 pm
Location: Vancouver BC

Postby Richardk » Fri Feb 05, 2010 4:37 pm

CureIous wrote:Yes, and wherever that post is with his personal number, it should be deleted immediately, cause now it's been noted, he can expect another 1,000 home phone calls in short order after people get done searching the site.

Mark


While I feel no need to justify calling Dr S, I think some clarification is in order.. I had received an email from the administration telling me I had an imminent app't with him, but no clarity as to dates, and this obviously was something to be determined ASAP.....there will be many situations where it is necessary for those heading to Katowice to confirm the details of their trip....unfortunately the email system to date has not been fully reliable.

Richard
User avatar
Richardk
Family Member
 
Posts: 59
Joined: Mon Dec 07, 2009 4:00 pm
Location: Vancouver BC

Simka's Phone Number

Postby fiddler » Fri Feb 05, 2010 4:50 pm

RichardK, while I understand that people going to Poland need to have some emergency number until such time as the Euromedic administrative team gets their act together, the number should not be out in public. Perhaps jimmylegs, another moderator, or someone who is on TiMS often and has been to Poland can become the "keeper of the number", to be shared only with people who are imminently going to Poland. I have to admit that I saved the number to my European phone in case of an emergency.
...Ted
Dx SPMS in 2004.  Liberated 29/04/2010.
My blog: www.my-darn-ms.blogspot.com
User avatar
fiddler
Family Elder
 
Posts: 398
Joined: Wed Dec 02, 2009 4:00 pm
Location: Fredericton, Canada

Next

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: bonzo1986