patient run study:disease activity on mri since liberation

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

patient run study:disease activity on mri since liberation

Postby Billmeik » Sun Feb 07, 2010 2:50 pm

40 patients who have mri's from right before liberation or right after, and now mri's from recently..

All mris get sent to a neuro who analyzes them for MS disease activity and publishes the results (at least to us)

minimum 6 months between before and after.

Prefer stents to angioplasty where restenosis is possible.

what think you?How many people have the pics?
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Postby Billmeik » Sun Feb 07, 2010 5:24 pm

I know its weird to have a neuro working on this but we are talking about MS the old disease that they know best. We are talking lesions and how much they've change or if there is any progreesion at all. It's important stuff we could find out now with a little initiative.
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Postby catfreak » Sun Feb 07, 2010 7:01 pm

I had an MRI in June 09, then had MRI/MRV Sept 2 and stents Sept 3 at Stanford. I had follow up MRI/MRV Nov 3rd at Stanford I just had another MRI on Monday and had no change since June.

I don't have my copy yet of this last one.

Cat
Holly - Shine On You Crazy Diamond - Pink Floyd

9/3/09 Stanford - Dr Dake - Stent in R-J to unblock Arachnoid Cyst in Sigmoid Sinus. Stent in narrowed L-J. Balloon in narrowing where R & L Jugulars meet.
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