Hamilton Conference Feb 7 .......Updated (Feb 22)

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby NewHope » Sun Feb 07, 2010 6:13 pm

Do they intend to upload the whole conference online so we can see it? I read somewhere in the forum they are going to put it on http://www.mrimaging.com/category.80.html
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Postby shye » Sun Feb 07, 2010 6:13 pm

Markus77
Thanks for posting this info--awesome stuff.
as of 2/8/10, updates should be on www.ms-mri.com
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Postby TFau » Sun Feb 07, 2010 6:22 pm

Thanks for posting that Johnson.

I really don't see how the presentations will fit with the schedule. I've given many scientific presentations, and with those slides, I'd be talking for about an hour. But he's in a 1.5 h slot with two others.

Oh well, something good has to come of the workshop, but I really think that they should have scheduled a full day or day and a half for that agenda. Maybe next time!
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Postby markus77 » Mon Feb 08, 2010 5:08 am

from FB user

Hi all. I attended the workshop today, and let me tell you, the cookies they served were really good. In all seriousness, it was quite an interesting day, and I learned a lot, including how many aspects of CCSVI are still waiting to be studied and explored. The audience was pretty receptive to the information presented; only one or two questioners ... See Moreposed any kind of challenge to the findings. I compiled some notes, but they're rather voluminous, and presumably once the video comes online you can watch it for yourself.

It seems like the work of Drs. Zamboni, Haacke, and Zivadinov are really starting to come together to form a coherent picture of things. One item of clinical interest for you was the emphatic point by Dr. Zivadinov that MRV (MRI venography) appears to be quite inferior to ultrasound when it comes to detecting CCSVI, at least when the ultrasound is done by people properly trained to look for it. He also mentioned an exciting press release coming out next week.

One of the other interesting general points made was that progress in moving CCSVI from bench to bedside, as it were, is happening remarkably fast for something of this nature and scale. It sounds like there's definitely reason to be optimistic.

so i guess doppler is the way to go if done properly....
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Postby costumenastional » Mon Feb 08, 2010 5:12 am

Thanks friend!
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Postby annad » Mon Feb 08, 2010 5:57 am

Thanks Markus! I like that write up better than the spec's
a
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Postby markus77 » Mon Feb 08, 2010 6:06 am

i got this information from a facebook user who attended the conference....
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Postby markus77 » Mon Feb 08, 2010 6:13 am

first media report:

" New theory suggests MS treatable

February 08, 2010
Dana Brown
The Hamilton Spectator
(Feb 8, 2010)

A controversial theory touting multiple sclerosis as a vascular disease is a "step in the right direction" but not a panacea, says a McMaster University professor.

Dr. Mark Haacke, director of the imaging division in the school of biomedical engineering at Mac, says it would not be a good idea for people to call the theory by Dr. Paolo Zamboni a cure for the disease.

"I think the key here is that these people who've had the disease, it may take a long time for the problems in the brain to clear up," said Haacke, who is also a professor at Wayne State University.

"They may still require the conventional treatments that they're getting now."

Zamboni has proposed that multiple sclerosis (MS) is a vascular disease that can be treated, rather than an auto-immune disorder with few treatment options.

His theory is called chronic cerebrospinal venous insufficiency.

He was in Hamilton yesterday for a scientific workshop at St. Joseph's Healthcare's Charlton Avenue site.

About 200 people, a mix of professionals, doctors, scientists, and people who suffer from MS attended.

The workshop was a closed event.

"I think it went very well," said Kevin Smith, CEO of St. Joseph's Healthcare.

"Obviously this was an opportunity for the scientific community to come together and chat with Professor Zamboni about his observations and others who've been involved in replicating his observations."

In addition to Zamboni, those in attendance say information from others doing similar work around the globe was presented.

Dr. Ian Rodger, vice-president of research at St. Joe's, said the workshop heard "undeniably" that there are patients who have had the medical procedure that is done based on his theory (it unclogs veins to the brain and improves blood flow) who quickly had relief from some MS symptoms such as fatigue and buzzing in their ears.

"What we don't know is how long does it last? ... No one's been following it long enough. But I think at the end of it all, (it's) highly encouraging that the data is steadily coming out."

Rodger also said Zamboni has not presented something "mind-shattering" as talk about problems with blood vessels in the brain leading to MS was around 100 years ago.

Smith said the MS Society of Canada has now put out a call for proposals to research the subject further.

St. Joe's and McMaster will be involved in bidding for the chance to conduct the study, he said.

St. Joe's has currently done some imaging work around the theory and was swamped with 22,000 request from MS patients wanting to take part.

A media conference will be held this morning to talk about what was presented at the workshop. "

sounds like there are still many sceptics out there.....patients my friends, it will come in time.
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Postby sonia52 » Mon Feb 08, 2010 6:26 am

Doctors Zamboni and Haacke will be interviewed at CFRA 580 today (Monday) or tomorrow (Tuesday) at 8:40 am.

www.cfra.com
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Postby sonia52 » Mon Feb 08, 2010 6:44 am

It was not today...
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Postby newfie-girl » Mon Feb 08, 2010 7:06 am

Tks, Markus!

For all of you late risers in central and western Canada, today Jan 8th, Seamus O'Reagan of Canada AM has a brief interview with Dr. Zamboni in the last half hour of the program.
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Postby markus77 » Mon Feb 08, 2010 8:59 am

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Postby markus77 » Mon Feb 08, 2010 9:10 am

news release by CHARITY INTELLIGENCE CANADA

http://www.newswire.ca/en/releases/arch ... c7529.html
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Postby cheerleader » Mon Feb 08, 2010 9:15 am

thanks for posting the Facebook page info here, Markus.
For those who Facebook (or even newbies) Come over to the CCSVI in MS Facebook page for updated news-
cheer

link to CCSVI
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby happy_canuck » Mon Feb 08, 2010 10:33 am

markus77 wrote:news release by CHARITY INTELLIGENCE CANADA

http://www.newswire.ca/en/releases/arch ... c7529.html


I just went through Charityintelligence.ca and nowhere is UBC or CCSVI mentioned as a recipient of any donations through this charity. Be cautious everyone! Make sure your donations go to the research you intended to fund.
National CCSVI Society: <strong><br /><a href="http://tinyurl.com/44znbct">http://tinyurl.com/44znbct</a> ~Website<br /><a href="http://tinyurl.com/3wzmkmg">http://tinyurl.com/3wzmkmg</a> ~Facebook</strong><br />
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