CCSVI LECTURE CALGARY FEB 7- OVERVIEW

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI LECTURE CALGARY FEB 7- OVERVIEW

Postby Andie » Mon Feb 08, 2010 11:10 am

HI ALL

I will be brief but am happy to answer any/ all questions.

the lecure was video-taped and we were told it would be at found at the ms society of canada's website- both Calgary and Winnipeg's forums.

Overall- I would say Dr. Metz ( also my neurologist) is cautiously optimistic.

she would like to see more studies done- only one study has been done with 65 participants and she was able to identify some issues with the parameters of the study.

also- she doesn't hold much belief in the stents- and she gave medical basis why-- and please note I was the first to jump into this surgery if given a chance.- anyway- stents are to be used in vessels- not veins-- veins are just a vehicle for the blood flow and therefore not capable of keeping something solid in it's grips- hence the emergency surgery at Stanford where a stent dislodged and caused a heart attack.

overall- it was very informative and was a basis for on-going research and discussion.

please feel free to write to me.

(I hope that helped in a nut shell)
Andie
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Postby happy_canuck » Mon Feb 08, 2010 11:21 am

Thanks, Andie!

It's good to hear doctors are being more receptive.

Sandra
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Postby letsfundccsvi » Mon Feb 08, 2010 1:46 pm

Thanks Andie,

Any indication as to whether or not anyone in Alberta will be conducting tests into CCSVI? I've heard of UBC and St. Joseph's / McMaster but nothing from Edomonton or Calgary...? And was there any talk about why the MS Society is not willing to fund this to a greater extent?
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study in Calgary or Edmonton

Postby Andie » Mon Feb 08, 2010 1:49 pm

Hi

I got the impression both edmonton and calgary have proposed to take part in a study-now- it has to be determined which city will get it-- I'm not exactly sure who decides and when the decision is set for- but my understanding is that one of the cities will partake in the study..

Andie
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Postby letsfundccsvi » Mon Feb 08, 2010 2:02 pm

Thanks. I hope we get a few sites all across Canada gathering data on CCSVI so that we get an answer that we can all trust!
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