This Is MS Multiple Sclerosis Community: Knowledge & Support

There will be an item tonight on Dutch tv on CCSVI (Eenvandaag, 18.15-18.40 hrs, ned 1 )

Is there finally a breakthrough for MS patients?

16.000 Dutch MS patients who suffer from this incurable disease are very excited. Medical science is more cautious but hopeful.

The Italian doctor Zamboni has succesfully operated a number of Ms patients, a relative simple procedure in which the veins in the neck undergo angioplasm.

The first Dutch patient has travelled to Poland to undergo Zamboni's procedure as doctors here are reluctant to operate.

http://www.eenvandaag.nl/binnenland/355 ... pati_nten_


If my guess is correct, there will be doctors responding who are working on the VU trial.

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dx 2002,RRMS,  suspected begin of MS 1978 (age 10)

Eve!

You beat me to it...I just wanted to announce this.


It is good to know that there is an internet page where you can see the item after it has been aired:
www.eenvandaag.nl

No subtitles yet, sorry.

Inge

and even so i do not understand dutch they, meaning oteh Tv station, also posted links to CCSVI pages on their webpage etc...hopefully the documentaiotn will be objective...
ines

Yes it is going to be objective.

I was involved in the process and I know that they interviewed one of the neurologists at the VUmc, who are conducting the research about the link CCSVI-MS. They are still skeptical, but positively optimistic.
Then they interviewed Yvonne, who was the first Dutch patient to be liberated in Poland and shows impressive improvements ever since.
And then they interviewed me.

They also bought the CTV documentary about Zamboni and will use pieces of that.

The objective of the item is to tell the world about this amazing discovery, the need for further reserach, the implications for PwMS and the role internet played in bringing this story to the world.

Hopefully it will put pressure on the speed of developments in The Netherlands.

Sorry about that Inge, I didn't mean to steal your thunder - after all you have been doing to get CCSVI the publicity and airtime!

I am just soooo excited.

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dx 2002,RRMS,  suspected begin of MS 1978 (age 10)

No Worries! I was only joking!

Glad you posted it.

sounds super super excellent....hope German Stations will follow....am trying also to get some radio braodcastings station involved and als news paper but sofar they kind of ignore me!
Will keep pushing....best
ines

It was a really good item! Compliments to Inge and all others involved.

Even the neuro from the VU trial seemed more positive than I had hoped for. He also said that they expected to have a lot more clearity about the theory within a year - and he said that if Zamboni's right, he could be in line for a nobel price. Hahaha. now that's something I agree with.

At the end the reporter said that they are doing a larger study in US, reports so far seem positive. So great report there. Again, hats off!

Btw translation is being made as we speak, sub will hopefully be available in a couple of days.

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dx 2002,RRMS,  suspected begin of MS 1978 (age 10)