Dutch tv item

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Dutch tv item

Postby eve » Tue Feb 09, 2010 3:20 am

There will be an item tonight on Dutch tv on CCSVI (Eenvandaag, 18.15-18.40 hrs, ned 1 )

Is there finally a breakthrough for MS patients?

16.000 Dutch MS patients who suffer from this incurable disease are very excited. Medical science is more cautious but hopeful.

The Italian doctor Zamboni has succesfully operated a number of Ms patients, a relative simple procedure in which the veins in the neck undergo angioplasm.

The first Dutch patient has travelled to Poland to undergo Zamboni's procedure as doctors here are reluctant to operate.

http://www.eenvandaag.nl/binnenland/355 ... pati_nten_


If my guess is correct, there will be doctors responding who are working on the VU trial.
dx 2002,RRMS,  suspected begin of MS 1978 (age 10)
User avatar
eve
Family Elder
 
Posts: 117
Joined: Tue Jan 05, 2010 3:00 pm
Location: Netherlands

Advertisement

Postby Inge67 » Tue Feb 09, 2010 3:50 am

Eve!

You beat me to it...I just wanted to announce this.
:wink:

It is good to know that there is an internet page where you can see the item after it has been aired:
www.eenvandaag.nl

No subtitles yet, sorry.

Inge
User avatar
Inge67
Family Member
 
Posts: 93
Joined: Mon Sep 28, 2009 2:00 pm
Location: The Netherlands

so cool

Postby coin » Tue Feb 09, 2010 4:24 am

and even so i do not understand dutch they, meaning oteh Tv station, also posted links to CCSVI pages on their webpage etc...hopefully the documentaiotn will be objective...:wink:
ines
User avatar
coin
Family Member
 
Posts: 63
Joined: Thu Dec 24, 2009 3:00 pm
Location: germany

Postby Inge67 » Tue Feb 09, 2010 5:02 am

Yes it is going to be objective.

I was involved in the process and I know that they interviewed one of the neurologists at the VUmc, who are conducting the research about the link CCSVI-MS. They are still skeptical, but positively optimistic.
Then they interviewed Yvonne, who was the first Dutch patient to be liberated in Poland and shows impressive improvements ever since.
And then they interviewed me.

They also bought the CTV documentary about Zamboni and will use pieces of that.

The objective of the item is to tell the world about this amazing discovery, the need for further reserach, the implications for PwMS and the role internet played in bringing this story to the world.

Hopefully it will put pressure on the speed of developments in The Netherlands.
User avatar
Inge67
Family Member
 
Posts: 93
Joined: Mon Sep 28, 2009 2:00 pm
Location: The Netherlands

Postby eve » Tue Feb 09, 2010 5:21 am

Sorry about that Inge, I didn't mean to steal your thunder - after all you have been doing to get CCSVI the publicity and airtime!

I am just soooo excited. :D
dx 2002,RRMS,  suspected begin of MS 1978 (age 10)
User avatar
eve
Family Elder
 
Posts: 117
Joined: Tue Jan 05, 2010 3:00 pm
Location: Netherlands

Postby Inge67 » Tue Feb 09, 2010 5:26 am

No Worries! I was only joking!

Glad you posted it.
:D
User avatar
Inge67
Family Member
 
Posts: 93
Joined: Mon Sep 28, 2009 2:00 pm
Location: The Netherlands

@Inge

Postby coin » Tue Feb 09, 2010 6:07 am

sounds super super excellent....hope German Stations will follow....am trying also to get some radio braodcastings station involved and als news paper but sofar they kind of ignore me!
Will keep pushing....best
ines :wink:
User avatar
coin
Family Member
 
Posts: 63
Joined: Thu Dec 24, 2009 3:00 pm
Location: germany

Postby eve » Wed Feb 10, 2010 12:32 am

It was a really good item! Compliments to Inge and all others involved. :D :D

Even the neuro from the VU trial seemed more positive than I had hoped for. He also said that they expected to have a lot more clearity about the theory within a year - and he said that if Zamboni's right, he could be in line for a nobel price. Hahaha. now that's something I agree with.

At the end the reporter said that they are doing a larger study in US, reports so far seem positive. :wink: So great report there. Again, hats off!

Btw translation is being made as we speak, sub will hopefully be available in a couple of days.
dx 2002,RRMS,  suspected begin of MS 1978 (age 10)
User avatar
eve
Family Elder
 
Posts: 117
Joined: Tue Jan 05, 2010 3:00 pm
Location: Netherlands


Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: mystery1980


Contact us | Terms of Service