Anemia after CCSVI procedure

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby jimmylegs » Tue Feb 09, 2010 8:13 pm

i will, thanks :lol: jk
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Postby Rose2 » Tue Feb 09, 2010 8:35 pm

Magoo,
Best of luck to you. wow. I feel you. Enough is enough, huh?
I am wondering how much effect the Coumadin regimen may have on anemia? I know my Coumadin fiasco was unusual, but I did end up receiving 2 units of blood and I felt soo good after I got those units.
Having been anemic for years, it was like a great boost!
I have been told mild to moderate anemia can be considered a standard with MS. Anyone else ever heard this before?
I have had a few breast biopsies from mammogram concerns, but all have been good. I think all radiologists are on their toes for sure with so much awareness now.
I donated 4 units of my own blood for a spinal fusion about 15 years ago, and got anemic but some good fried livers and onions really brought those numbers back up!! It was amazing!!
You are in my prayers and thoughts. Rose
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Postby TFau » Wed Feb 10, 2010 7:08 am

Just writing to add my best wishes on your appt on the 19th and getting your iron sorted out!

Why is it always something!
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Postby magoo » Fri Feb 12, 2010 12:05 pm

Great news everyone, my repeat mammogram was just fine! I got in early and I'm so glad I can put that worry to rest. Thanks for all of the positive energy and thoughts:) (Beth, I see that I missed your call today, you are so sweet to check in)
Also, I am iron deficient, so my doctor wants to investigate whether the aspirin and Plavix may be a factor. My other tests were good. I emailed Dr. Dake about taking an iron supplement. If he's okay with it I'll get started and hopefully get my energy back.
Another good thing is since I increased my salt intake I haven't had anymore headaches and fewer dizzy spells. So all in all I am getting back to normal! I am so happy none of this had anything to do with MS or CCSVI!!!!!!!
I hope you all have a wonderful weekend and a Happy Valentine's Day!
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby markus77 » Fri Feb 12, 2010 12:25 pm

thats great to here magoo............i just new everything would be ok... ; )
STAY REAL MY FRIENDS

dx 1989, spms
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Postby magoo » Fri Feb 12, 2010 1:24 pm

Thanks Marko!
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby berriesarenice » Fri Feb 12, 2010 1:35 pm

So good to hear this! I was worried for you.
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Postby prof8 » Fri Feb 12, 2010 3:32 pm

Rhonda, I'm so glad for the good news. What a relief! Just watch out with the iron supplements--they can cause constipation. So can calcium for that matter. Anyhow, my iron stores are quite low and I'm borderline anemic. There is a liquid iron supplement by Floradix that is not as bad with constipation. The problem is, it is a bit on the expensive side. Good luck!
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Postby ozarkcanoer » Fri Feb 12, 2010 4:02 pm

:D Fantastic, magoo :D

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Postby magoo » Fri Feb 12, 2010 5:16 pm

Thank you so much for the support!
I hope the iron kicks in and I get my energy back because it is snowing and I can't wait to get out there and play!
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby magoo » Wed Feb 17, 2010 6:26 pm

So I saw my GP today to follow up and looks like I'm in for some more tests. Cheer was on target when she asked about the Plavix and aspirin. I may have an internal bleed somewhere so I've stopped Plavix and I'm preparing for endoscopy and colonoscopy.....uuggghhhh! I wanted to keep this thread going for those of you taking Plavix and asiprin. If you are feeling off or extra tired, or dizzy, get your blood checked. We'll see how this plays out. Boy, am I tired of tests!!! Oh well, minor inconvenience when I think about how much better life is post CCSVI!
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby CRHInv » Wed Feb 17, 2010 6:41 pm

Oh boy! I am glad you got in early for the first episode... seems like you are good at that! If I remember right you got in to see Dr. Dake pretty quick too. I hope this gets resolved super fast so you can get back to making up for lost time with your family. Keep us up to date.
I am going on a field trip with my youngest kiddo's class tomorrow. Going on on the bus and everything! (I usually avoid that like the plague!)
Yikes!
Beth
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
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Postby ozarkcanoer » Wed Feb 17, 2010 6:42 pm

magoo,

Sorry for all your problems. I had a colonoscopy last summer. It's no big deal except for the prep the night before. I hope things get better for you really soon !!!!

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Postby Brynn » Thu Feb 18, 2010 8:08 pm

Magoo, wonderful news! I had been thinking about you this week. I will be curious how your testing plays out. Good luck! :D Brynn
41 years old, dx 1998, current EDSS 6.5
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Postby magoo » Fri Feb 19, 2010 12:48 pm

Beth~ I did a field trip this week too!!!!!!!!!!! My first one in ages. I am so happy to say I navigated the city and felt so good afterwards. This is a real accomplishment for us to be able to participate like this again, right Beth?! I hope you have fun:)
OZ~ I am already feeling such a burst of energy from the iron supplements it's incredible!! I have been sleeping really well again and just feeling great. I'll get the tests overwith and move on. Not fun, but necessary:)
Brynn~ Thanks! How are you doing? Your improvements have been good too, right? That is wonderful:)
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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