This Is MS Multiple Sclerosis Community: Knowledge & Support

On Friday Feb 12 there will be a presentation on CCSVI in which they should annouce the results of the preliminary Buffalo Study.
I hope somebody will post a video of the meeting.
This should spark interest in treatment since this is aimed at doctors already treating venous disorders.

8:30am 20
Endovascular Treatment For Chronic
Cerebrospinal Venous Insufficiency In
Multiple Sclerosis: A Longitudinal MRI
Blinded Pilot Study
P. Zamboni1, R. Galeotti1, B. Weinstock-
Guttman2, G. Cutter3, E. Menegatti1, A. M.
Malagoni1, I. Bartolomei4, J. L. Cox2, F. Salvi4, R.
Zivadinov2 - 1University of Ferrara, Ferrara,
Italy; 2NY State University in Buffalo, Buffalo,
NY; 3University of Alabama, Birmingham, AL;
4Bellaria Neurosciences, Bologna, Italy

I just saw your post Nunzio. Thanks for posting it. I found the website for the American Venous Forum which is veinforum.org and I see that the 22nd meeting is beginning today 2/10/2010 and goes through Saturday 2/13/2010. I live in South Florida but I hope some of the doctors at Mayo clinic in Jacksonville go to that meeting and hear about CCSVI and the Liberation Treatment on the 12th. Could you imagine if just a few of the doctors at the Mayo Clinic get on board with the Liberation Treatment for CCSVI? That would be like dumping a bucket of gasoline on this little campfire that Dr. Zamboni started! Anyway, last week I sent out 20 letters to doctors in south Florida and also to doctors at the Mayo clinic in Jacksonville. Did you get the schedule for the CCSVI presentation on the 12th from the veinforum.org website? I can't seem to find a schedule of events and I would like to forward this information along to the doctors that I sent the letters to at the Mayo clinic since this meeting in Amelia Island is less than an hour from Jacksonville. These are exciting times for those of us suffering from MS and for the caretakers too!

We Can Beat MS

With a little more digging I found the program. Here is the link to the PDF for anyone that may be in NorthEast Florida or SouthEast Georgia and/or has doctors that are near there I would certainly encourage them to go Friday morning to hear the CCSVI presentation. http://veinforum.org/uploads/File/annua ... ochure.pdf

Faith, Hope & Love

We Will Beat MS

Hi We Will Beat MS,
I am glad you found the link which they still call preliminary

http://veinforum.org/uploads/File/annua ... ochure.pdf

I am sure this will start a fire since once the doctors see Dr. Zamboni et Al. presentation with obvious vein malformations, membranes blocking flow, compression, twisting etc. which obviously cannot just be a coincidence should get on board with it.
I am hoping too that centers like Univ of Miami and Cleveland clinic will start their own diagnostic centers.
University of south Florida in Tampa is going to start a diagnostic center soon.
Let's keep our fingers crossed

bump

So, does anyone have anything to report about this meeting?

I have found nothing but I was also hoping that the thread starter was closer to the info...??

see pdf of American Venous Forum...Saturday February 13th, 10:05 am
1 1/2 hr. discussion of CCSVI..progress!

http://veinforum.org/uploads/File/annua ... ochure.pdf

I did not go to the meeting and I was hoping that somebody that did would report to us

(FRIDAY, FEBRUARY 12th
7:00 am Continental Breakfast/Exhibits Open
7:30 am SCIENTIFIC SESSION IV
Multi-Topic
Moderators: Michael A. Vasquez, MD &
M. Ashraf Mansour, MD
Educational Objective: At the conclusion of the
session, participants should have a better
understanding of (1) the relationship of the
Venous Clinical Severity Score to other venous
assessment tools in a general venous screening
population, (2) thromboembolic complications
following Inferior Vena Cava penetrating
injuries and (3) treatment options for chronic
cerebrospinal venous insufficiency in Multiple
Sclerosis.)
Maybe need to wait if a news release after the close.
Sorry...just a little too anxious on my part.

Okay...I have been checking back all day...no results yet?!

_________________
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

10:30 am – 11:00 am To Stent or Not To Stent? That Is the
Question
PRO: Peter Neglen, MD
CON: Gregory L. Moneta, MD


I'd like to have heard this one...