Hi kacey and Costume,
I know kacey and Michael did not have unrealistic expectations regarding the procedure -- yes, it is hopefully to stop progression, not to relieve symptoms, but, for whatever reasons, the procedure does sometimes relieve them.
The point of kacey's thread, as I understand, is that Michael's leg pain did
disappear for three weeks after the procedure, but then it came back -- and it came back so strongly that he required proper pain management, which he did finally
And I have to agree with you, Costume -- imo, it feels downright criminal what some doctors sometimes say, don't say, do and don't do, especially when they withhold proper pain control medications.
At the very least, Michael's neuro should have been compassionate about his pain and given an emergency referral to a pain management specialist.
A neuro believing that MS doesn't cause pain must still be in the dark ages -- that's what the prevailing thought was ten years ago when I was diagnosed. Pain is now listed as an MS symptom by every MS association and numerous other organizations as well as in textbooks.
But it doesn't take a textbook past high school anatomy to know that BOTH sensory (afferent - to the brain) and motor (efferent - from the brain) nerves run inside the spinal cord, and in MS, BOTH can be affected by MS-caused inflammation, demyelination, axonal loss and atrophy -- ergo, any sense can be affected, just like any motor function can be... and the sensation of pain is one of the first sensations to have evolved.
Doctors not knowing that MS can cause pain is the BIGGEST problem I've personally faced in my decade with MS. Sheesh. Stupid doctors.
kacey, I'm with you -- I would have cleaned his clock, too!!
And, because I take this issue very
personally, I then would have stood and shouted an anatomy lesson two inches from his face, would have called him an idiot, would have told him I would be instructing my insurance company not to pay for the wasted office visit, would be posting his name on every quackery website on the Internet, and would be turning him into the proper agencies for medical negligence. I then would have stormed out of his office slamming the door after me!