How & Where to Get Tested-Treated for Blocked Veins (CCS

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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kuruc
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How & Where to Get Tested-Treated for Blocked Veins (CCS

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How & Where to Get Treated for CCSVI.[/
Places for testing
Protocols for testing
Interventional radiologists and vascular surgeons that will treat the stenosis.
There are 2 types of tests. Doppler and MRV (a variation on MRI). The tests need to be able to image blood flow in veins as opposed to arteries and requires different protocol and software. Please post your test results and the name of the organization that did the testing.
The treatment is angioplasty in the vein, called veinoplasty. A relatively simple procedure where a probe is inserted in the groin and directed to the place where the blockage is in the jugular vein in the neck or to the azygous vein in the chest. A balloon is used to open the vein. If needed a stent is inserted if required to keep the vein open. The resulting blood flow usually produces immediate positive results especially for remitting and relapsing MS patients. The benefits for primary progressive MS patients is not as dramatic and long term results are not yet known.
The operation lasts usually under an hour. A dye is used to help the surgeon see where the blockages are located during the operation.
If you had the procedure done, tell us the location, the surgeon's name and the results.
Let's start getting ready for treatment. Get diagnosed and then let's find the surgeons willing to do the treatment.
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kuruc
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Poland

Post by kuruc »

Dr Simka does the testing mariansimka@poczta.onet.pl Dr. Ludyga does the operation. They treat patients on an ongoing basis and are scaling up. The Apollo Hospital Chain in India will be starting treatment in March. http://www.apollohospdelhi.com/about-us/contact.html Cuba offers the treatment as well. Contact me privately for contact info.
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