Ella's adventures in Katowice

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

5 days post op

Postby Dovechick » Tue Feb 23, 2010 11:34 am

Just got a phone call from Ella, been to work today aften flying home from Poland yesterday and arriving back at her flat at midnight. She says she felt strong and thought her balance was a bit better.
To me this is quite amazing... on the plane yesterday she was alert when I was dozing, she was joking with the men getting her off the plane, when all I could do was stand up straight. Today it took a good deal of energy to get myself out of bed and clean the house, and she is off to work, driving 35 minutes there and back and feeling elated.
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
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Ella

Postby Ruthless67 » Tue Feb 23, 2010 11:40 am

Dovechick,

All I can say is YaHoo!!!!!!!!!

Lora
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Postby Mutley » Tue Feb 23, 2010 12:05 pm

Brilliant news, let the healing begin!
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
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Postby Vhoenecke » Tue Feb 23, 2010 12:20 pm

Thanks for being the mother that you are Dovechick. You Rock! I am a mother of 2 beautiful daughters and once I found out I had MS in Jan 2009 I was mortified for my daughters. I watched my dad die from this disease as well. Went from being a man who was loud and the life of the party to a man that described himself as "Two eyes looking out of a coffin" There is hope for my family and myself. I never thought this would happen. I am on the list for Bulgaria, June 2010 and can't wait for liberation.
Was there a concern flying so close to having the procedure done? I like to worry :lol:
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Postby ozarkcanoer » Tue Feb 23, 2010 12:23 pm

DoveChick,

This is great news !! Keep us posted on Ella's progress.

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flying close to procedure

Postby Dovechick » Tue Feb 23, 2010 12:32 pm

The clinic in Poland advised us to stay close for 5 days after the procedure just in case but we actually flew home after 4 days. Because of the blood thinning drugs there is a risk of bleeding, but the risk is fairly small since the wound is tiny. They do take blood samples before the op to ascertain your blood's need for thinners.
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
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Postby Vhoenecke » Tue Feb 23, 2010 12:37 pm

I am so thankful that you are sharing the experiences you had with your daughter. I hope many more of us have great experiences to share. It's like I am in a dream as this doesn't seem possible.
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Postby dunkempt » Tue Feb 23, 2010 2:52 pm

The clinic in Poland advised us to stay close for 5 days after the procedure just in case but we actually flew home after 4 days. Because of the blood thinning drugs there is a risk of bleeding, but the risk is fairly small since the wound is tiny. They do take blood samples before the op to ascertain your blood's need for thinners.


"Stay close for 5 days just in case" :!:
Was this because of anything specific in Ella's case? Because I booked flights based on their email:

You need to arrive in Poland the latest 23rd March, departure 28th
March.


And then, heck, added another day for fun. But that's still only 4 days. If they think it would be wiser to stay 5 days, I wish someone had told me...

-d
dx rrms august 2009 (dx CFS spring 1988) off avonex after 3 months
treated katowice 24-25 march 2010 - best thing that ever happened - check tracking thread
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stay in Poland

Postby Dovechick » Tue Feb 23, 2010 9:41 pm

All my contact was with Dr Simka directly back in November, since then they have appointed an organiser/administrator to make hotel bookings and arrange transport between medical facilities. Additionally they have much more experience now than they had then of dealing with people have to travel by air.
It is my guess that they are now recommending what they think is best from their experience and to make the trip more affordable. I thought they were being a bit cautious at the time, other people were flying back the next day, but as I was not doing this for myself but for my daughter I decided to go close to what they recommended. If they had said stay 2 days I would have been happy with that...
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
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Re: thanks

Postby pegmegrund » Tue Feb 23, 2010 10:02 pm

Dovechick wrote: Looking back it is an amazing adverture that I would not have considered myself capable of. I'm a bit of a home bird and have never considered travel something to enjoy. But there you are: a parent will do anything for their child, no matter how old they are.


This brought tears to my eyes. I know my mom would do the same for me. Thank you for keeping us up to date. Good to hear about Ella's day at work!
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Postby costumenastional » Tue Feb 23, 2010 11:00 pm

My God... i hope everything will go better and better from now on.
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Postby acol » Wed Feb 24, 2010 3:20 am

My trip to Poland is a little tight in respect of convalesence. Procedure (assuming stenosis) on 25 March and flight return early am on 27th. In an ideal world I would have preferred more time but needs must. At least I will be fairly inactive as I will be pushed in a wheelchair.

For some reason none of my communications with Dr Simka have included any recommendations regarding length of stay in Poland.
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stay in poland

Postby Dovechick » Wed Feb 24, 2010 4:12 am

Nigel, I asked the question... he answered. Things are different now they have an administrator.
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.
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Postby ClaireParry » Wed Feb 24, 2010 4:16 am

Michele - what great news of Ellas improvement. Long may it last. I can't wait to get out there and have mine done. I can't concentrate on work at the moment!!

Send Ella my best and wish her well.

Claire.
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Postby acol » Wed Feb 24, 2010 9:20 am

dovechick

I see. Did you raise the question with Dr Simka or with the new administrator? To date I have not had any e-mails from the administrator and would have to check this board to get the e-mail address.
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