This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Thu May 23, 2013 1:56 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 118 posts ]  Go to page Previous  1 ... 3, 4, 5, 6, 7, 8  Next
Author Message
 Post subject: 5 days post op
PostPosted: Tue Feb 23, 2010 12:34 pm 
Offline
Family Elder
User avatar

Joined: Sun Feb 12, 2006 4:00 pm
Posts: 345
Location: Sussex UK
Just got a phone call from Ella, been to work today aften flying home from Poland yesterday and arriving back at her flat at midnight. She says she felt strong and thought her balance was a bit better.
To me this is quite amazing... on the plane yesterday she was alert when I was dozing, she was joking with the men getting her off the plane, when all I could do was stand up straight. Today it took a good deal of energy to get myself out of bed and clean the house, and she is off to work, driving 35 minutes there and back and feeling elated.

_________________
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.


Top
 Profile  
 
 Post subject: Ella
PostPosted: Tue Feb 23, 2010 12:40 pm 
Offline
Family Elder
User avatar

Joined: Tue Oct 27, 2009 4:00 pm
Posts: 422
Location: Montana, USA
Dovechick,

All I can say is YaHoo!!!!!!!!!

Lora


Top
 Profile  
 
 Post subject:
PostPosted: Tue Feb 23, 2010 1:05 pm 
Offline
Family Elder
User avatar

Joined: Thu Nov 12, 2009 4:00 pm
Posts: 207
Location: England
Brilliant news, let the healing begin!

_________________
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5


Top
 Profile  
 
 Post subject:
PostPosted: Tue Feb 23, 2010 1:20 pm 
Offline
Family Elder
User avatar

Joined: Sat Dec 12, 2009 4:00 pm
Posts: 332
Location: Rosetown, Canada
Thanks for being the mother that you are Dovechick. You Rock! I am a mother of 2 beautiful daughters and once I found out I had MS in Jan 2009 I was mortified for my daughters. I watched my dad die from this disease as well. Went from being a man who was loud and the life of the party to a man that described himself as "Two eyes looking out of a coffin" There is hope for my family and myself. I never thought this would happen. I am on the list for Bulgaria, June 2010 and can't wait for liberation.
Was there a concern flying so close to having the procedure done? I like to worry :lol:


Top
 Profile  
 
 Post subject:
PostPosted: Tue Feb 23, 2010 1:23 pm 
Offline
Family Elder
User avatar

Joined: Thu Oct 15, 2009 3:00 pm
Posts: 1273
Location: St. Louis, Missouri
DoveChick,

This is great news !! Keep us posted on Ella's progress.

ozarkcanoer


Top
 Profile  
 
PostPosted: Tue Feb 23, 2010 1:32 pm 
Offline
Family Elder
User avatar

Joined: Sun Feb 12, 2006 4:00 pm
Posts: 345
Location: Sussex UK
The clinic in Poland advised us to stay close for 5 days after the procedure just in case but we actually flew home after 4 days. Because of the blood thinning drugs there is a risk of bleeding, but the risk is fairly small since the wound is tiny. They do take blood samples before the op to ascertain your blood's need for thinners.

_________________
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.


Top
 Profile  
 
 Post subject:
PostPosted: Tue Feb 23, 2010 1:37 pm 
Offline
Family Elder
User avatar

Joined: Sat Dec 12, 2009 4:00 pm
Posts: 332
Location: Rosetown, Canada
I am so thankful that you are sharing the experiences you had with your daughter. I hope many more of us have great experiences to share. It's like I am in a dream as this doesn't seem possible.


Top
 Profile  
 
 Post subject:
PostPosted: Tue Feb 23, 2010 3:52 pm 
Offline
Family Elder

Joined: Sun Nov 29, 2009 4:00 pm
Posts: 142
Location: Heart of the Continent
Quote:
The clinic in Poland advised us to stay close for 5 days after the procedure just in case but we actually flew home after 4 days. Because of the blood thinning drugs there is a risk of bleeding, but the risk is fairly small since the wound is tiny. They do take blood samples before the op to ascertain your blood's need for thinners.


"Stay close for 5 days just in case" :!:
Was this because of anything specific in Ella's case? Because I booked flights based on their email:

Quote:
You need to arrive in Poland the latest 23rd March, departure 28th
March.


And then, heck, added another day for fun. But that's still only 4 days. If they think it would be wiser to stay 5 days, I wish someone had told me...

-d

_________________
dx rrms august 2009 (dx CFS spring 1988) off avonex after 3 months
treated katowice 24-25 march 2010 - best thing that ever happened - check tracking thread


Top
 Profile  
 
 Post subject: stay in Poland
PostPosted: Tue Feb 23, 2010 10:41 pm 
Offline
Family Elder
User avatar

Joined: Sun Feb 12, 2006 4:00 pm
Posts: 345
Location: Sussex UK
All my contact was with Dr Simka directly back in November, since then they have appointed an organiser/administrator to make hotel bookings and arrange transport between medical facilities. Additionally they have much more experience now than they had then of dealing with people have to travel by air.
It is my guess that they are now recommending what they think is best from their experience and to make the trip more affordable. I thought they were being a bit cautious at the time, other people were flying back the next day, but as I was not doing this for myself but for my daughter I decided to go close to what they recommended. If they had said stay 2 days I would have been happy with that...

_________________
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.


Top
 Profile  
 
 Post subject: Re: thanks
PostPosted: Tue Feb 23, 2010 11:02 pm 
Offline
Family Elder
User avatar

Joined: Sat Oct 31, 2009 4:00 pm
Posts: 110
Dovechick wrote:
Looking back it is an amazing adverture that I would not have considered myself capable of. I'm a bit of a home bird and have never considered travel something to enjoy. But there you are: a parent will do anything for their child, no matter how old they are.


This brought tears to my eyes. I know my mom would do the same for me. Thank you for keeping us up to date. Good to hear about Ella's day at work!


Top
 Profile  
 
 Post subject:
PostPosted: Wed Feb 24, 2010 12:00 am 
Offline
Family Elder
User avatar

Joined: Sat Jan 31, 2009 4:00 pm
Posts: 740
Location: Greece
My God... i hope everything will go better and better from now on.


Top
 Profile  
 
 Post subject:
PostPosted: Wed Feb 24, 2010 4:20 am 
Offline
Family Elder
User avatar

Joined: Mon Oct 12, 2009 3:00 pm
Posts: 157
Location: Bucks, England
My trip to Poland is a little tight in respect of convalesence. Procedure (assuming stenosis) on 25 March and flight return early am on 27th. In an ideal world I would have preferred more time but needs must. At least I will be fairly inactive as I will be pushed in a wheelchair.

For some reason none of my communications with Dr Simka have included any recommendations regarding length of stay in Poland.

_________________
Nigel


Top
 Profile  
 
 Post subject: stay in poland
PostPosted: Wed Feb 24, 2010 5:12 am 
Offline
Family Elder
User avatar

Joined: Sun Feb 12, 2006 4:00 pm
Posts: 345
Location: Sussex UK
Nigel, I asked the question... he answered. Things are different now they have an administrator.

_________________
Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.


Top
 Profile  
 
 Post subject:
PostPosted: Wed Feb 24, 2010 5:16 am 
Offline
Family Elder
User avatar

Joined: Tue Oct 20, 2009 3:00 pm
Posts: 218
Location: Worcestershire, U.K
Michele - what great news of Ellas improvement. Long may it last. I can't wait to get out there and have mine done. I can't concentrate on work at the moment!!

Send Ella my best and wish her well.

Claire.


Top
 Profile  
 
 Post subject:
PostPosted: Wed Feb 24, 2010 10:20 am 
Offline
Family Elder
User avatar

Joined: Mon Oct 12, 2009 3:00 pm
Posts: 157
Location: Bucks, England
dovechick

I see. Did you raise the question with Dr Simka or with the new administrator? To date I have not had any e-mails from the administrator and would have to check this board to get the e-mail address.

_________________
Nigel


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 118 posts ]  Go to page Previous  1 ... 3, 4, 5, 6, 7, 8  Next

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Fraser's Adventures in Poland...

[ Go to pageGo to page: 1, 2, 3, 4, 5 ]

fraser

71

11635

Wed Nov 24, 2010 9:23 am

fraser View the latest post

There are no new unread posts for this topic. Erika is in Katowice

[ Go to pageGo to page: 1, 2, 3 ]

Fatima

37

3474

Sat Nov 07, 2009 1:08 pm

ErikaSlovakia View the latest post

There are no new unread posts for this topic. In Katowice, Poland now :D

lilaclomax

14

1710

Thu Mar 18, 2010 11:43 pm

hope410 View the latest post

There are no new unread posts for this topic. Katowice May 24th, anyone else

annie66

2

815

Sun May 02, 2010 8:27 am

annie66 View the latest post

There are no new unread posts for this topic. Miia in Katowice May 09-15, anyone else??

Miia

4

1005

Wed May 12, 2010 2:01 am

mags4short View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: