This Is MS Multiple Sclerosis Community: Knowledge & Support

I'm starting this thread because next week my daughter Ella, her boyfriend Dan and I are flying to Poland to have the tests and the treatment. Everyone who has embarked on this adventure knows how fraught with uncertainties the whole process is: will we get an answer to our emails, will we get an appointment, how much is it going to cost, will the price change, will it be snowing, can I drive to the airport in the snow, will the airport be operational on the day, how are we going to cope with the freezing temperature, will Dr Simka find a problem with her veins, will she get a stent, and the big question WILL IT MAKE A DIFFERENCE?
Well watch this space and all will be revealed. While we are away I have asked Olive to post here on our behalf, as I will be texting her with daily bulletins...

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Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.

Dear Dovechick, Ella + boyfriend, but especially Ella.
I wish you successfull trip without any problems!
Erika

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Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

Wishing you all - especially Ella a successful and productive trip, Will be watching this thread very closely to see how you all get on.

Thanks, Erika, you have done much to make things easier for us, and the only thing Ella has allowed herself to find out about is the video of your procedure.

And Crocky thanks for the good wishes...

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Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.

All the best to you all. I really hope that Ella's experience is minimally invasive, and hugely successful.

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My name is not really Johnson. MSed up since 1993

hi i folllowed your postings on CPn Help.orf.Iam so excited for ella to get the operation. You as a mother are wonderful and strong.I think this will be your answer good luck.

Thanks Jak and Johnson.

Jak nice to know that CPn Help people are tracking me, I'm still there but keeping low profile, because understandably not everyone is keen to hear what I have to say about CCSVI. When I return I will post something about the trip and Ella on that site and see what the reaction is...

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Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.

Good luck to Ella with her adventure in Poland
and to you Michelle and her Boyfriend. I hope its all a success. I have a slot in late April so looking forward to hearing all.

She is lucky to have a go-getting Mum like you. Looks like there is going to be a testing centre in the UK soon.

God bless

Maureen

Ohh Michele and Ella,\



Good luck next week, I know it has been a long time coming. Everything will be fine. I think for Ella at her age this will be nothing but a bad dream.

My heart goes with you!

kc

Hi Michele,

Good luck with your trip next week
Ella will be the safest hands with Dr Simka and his team.
Looking forward to hearing how it goes ?

Best wishes

Michele,

Best wishes on your trip to Poland and Ella's. tests & procedure. Ella will be in good hands with you and Dr. Simka. We look forward to hearing the good news on your return.

Wishing you a great trip.
Stephen

Thank you all for your good wishes and holding thoughts. We are trying to keep calm... You all probably have a very good idea of how much we want this to happen and make a difference to Ella. Dan has been a brick and it would be really nice for them both to have some reprieve from this dreadful disease. We shall wait and see, she has age on her side, but has been poorly for 5 years now so not sure how much recovery she can make. But lack of progression would be a good thing.

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Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.

Hi Dovechick

I wish Ella all the best,this is very exciting!
Ella is lucky and i am sure very grateful to have you and Dan on her side

Pam

Michele I will be thinking of you and your daughter - lots of prayers being said in Ireland - I wish you all the very best and I really really hope that this is a massive success.

fingers and toes crossed!

I'm on a bit of a buzz today after seeing the news story on SkyNews - it looks like the message is getting out there. So many ppl texted me to say it was on - people are definitely aware - lets hope this is a push in the right direction to get things moving!

Keep us posted.
x

Thanks Muriel for your kind thoughts, that was our Martin on sky news. He was very nervous he tells me. He is part of the www.ms-ccsvi-uk.org group who are trying very hard to raise the profile of CCSVI in the UK.

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Michele,  warrior4MS, mother and champion for Ella, the MSer. The solution is out there we just have to ask the right questions.