Media Coverage on CCSVI!!!!!!!!!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby tzootsi » Thu Feb 11, 2010 11:14 am

Here's a new BBC one - VERY interesting interview with one of Zamboni's early patients:
http://news.bbc.co.uk/2/hi/health/8510437.stm
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Postby GuRu » Thu Feb 11, 2010 11:15 am

An other interesting Documentry!!!!!!!!!!

http://www.cbc.ca/video/#/News/TV_Shows ... 1410277156
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Postby GuRu » Thu Feb 11, 2010 11:18 am

We must learn our limits. We are all something, but none of us are everything.
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Postby L » Thu Feb 11, 2010 11:52 am

tzootsi wrote:Here's a new BBC one - VERY interesting interview with one of Zamboni's early patients:
http://news.bbc.co.uk/2/hi/health/8510437.stm


That's just great. Thanks tzootsi. The patient is 'one of Northern Ireland's leading heart surgeons. '

And he says this of his CCSVI intervention:

"But five hours after the procedure I can walk without my stick, I can lift my leg, my back is stronger I'm taller.

"In the subsequent days and weeks I see that other functions which were not working 100%, they work."

One to print off for a doubting neurologist.
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Postby paulmur » Thu Feb 11, 2010 2:46 pm

Good Job Sam. Looking great too!
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Postby GuRu » Thu Feb 11, 2010 4:24 pm

We must learn our limits. We are all something, but none of us are everything.
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Postby jr5646 » Thu Feb 11, 2010 4:41 pm

GuRu wrote:
Cece wrote:Still no U.S.!! CNN, where are you?!


They are still sleeping as well as German :)


Isn't it interesting how the lack of news coverage correlates with LARGE pharma location.. Just an observation...

Germany - Merck Group (Serono)
http://www.merck.de/en/company/merck_at_a_glance.html

USA - Biogen Idec
http://www.biogenidec.com/about_corporate_overview.html
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Postby cah » Thu Feb 11, 2010 5:32 pm

This is the complete situation in europe as far as I could find out (there may be other distributors):

Copaxone: TEVA (Petach Tikwa, Israel), distributed in Europe and USA by Sanofi-Aventis (Paris, France)

Betaferon: Bayer Schering Pharma (Berlin, Germany)

Extavia (identical to Betaferon): Novartis (Basel, Switzerland)

Avonex: Biogen Idec (intl. Central: Zug, Switzerland)

Rebif: Merck Serono (Darmstadt, Germany)

Tysabri: Elan (Dublin, Ireland) / Biogen Idec (intl. Central: Zug, Switzerland)

As far as I know, you haven't heard of CCSVI in Switzerland either...
"There is only one good, knowledge, and one evil, ignorance." Socrates
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Postby prof8 » Thu Feb 11, 2010 5:45 pm

Thanks Sammy Jo for doing the interview. It was great!
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Postby GuRu » Thu Feb 11, 2010 6:40 pm

We must learn our limits. We are all something, but none of us are everything.
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Postby Zeureka » Thu Feb 11, 2010 6:41 pm

prof8 wrote:Thanks Sammy Jo for doing the interview. It was great!

Yes, really, wow SammyJo + all the others in the interviews!

The media gets rolling - even my boss in UK (who knew went to Poland for doppler and why) sent me a SMS that he had finally seen CCSVI on BBC and that s.o. there was going to Poland 8) !

Thanks a lot for all of you collecting these videos + news here!
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Let us not forget Putnam

Postby Ruthless67 » Thu Feb 11, 2010 10:58 pm

I’m reading where folks are disappointed that Dr. Zamboni said, those with severe disability that he's treated have only experienced "less fatigue and were less tired and more positive".

Elsewhere on this board are discussions about MS. Doctor, Tracy Putnam, and his early research. I couldn’t find the thread I wanted, I found plenty of “Putnam” treads just not the right one, lol.
The one I was looking for talked about why his research got buried and as I remember, which probably is not anywhere close to a quote, it went something like this.

Once Dr. Putnam announced his theory, MS patients clamored and besieged him wanting a Cure & wanting it Now so he tried, I believe? Oral Vascular medications or something like that?? (I’m probably technically wrong here, but hear me out anyway, cause that's not the point I'm trying to make.)
The point being,...... they didn’t work, so NO Cure, and life went on, his work got buried and the auto-immune Theory prevailed.

What concerns me is a parallel to what is happening today with Dr. Zamboni. The MS Societie's in the Media coverage I’ve seen so far hint at this scenario. Saying something close to “Our phone where flooded with phone calls, our offices were besieged, our work ground to a halt! These pesky MS’ers lumbered in with their wheelchairs and canes and just kept coming, and coming, looking for a miracle. And now, look folks, it’s a fluke, people aren’t jumping straight out of their wheelchairs after “The procedure” they are not "Cured.” So don’t stop taking your current medications and be sure to watch for our updates on the New Oral Drugs which will be coming soon, made available to you through your local friendly Neurologist!”

So ALL of you pioneers who have had the procedure done, please like Sammy Jo stated so eloquently, "Don't worry, I'm looking forward to making an impressive comeback! That is why it is so important that those of us who were early pioneers, and lucky enough to get the treatment, post our results in the CCSVI Tracking Log here at TIMS. We have to write our own case reports, honestly, the good, the bad. This will help other patients decide on trial participation, and help doctors develop good diagnostic protocols, treatment procedures, and follow up therapies for CNS repair. If it weren't for the resources posted here at TIMS by those who went before me, I would not have had the confidence to try this."

Let’s not let this information stagnate, we’ve got research to do!!! We may not have the “CURE” YET, but we’ve got a course set and it looks good, I mean, More than 55 percent !!!

Lora
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Postby AndrewKFletcher » Fri Feb 12, 2010 3:20 am

Inclined Therapy works for PP and SP ms!

Have you been reading the results so far on the Inclined Bed Therapy Threads?

Why isn't this mentioned in tv programmes and news articles? Zamboni says the liberation procedure has not been shown to work with either of these conditions and he is also probably refering to those people with RR ms who didn't respond to the proceedure too.

It's about time everyone on the forum began to sit up and take note about the posts on the Inclined Bed Therapy threads!

In 1995 I was showing how a simple posture change could alter varicose veins. Chronic Venous Insufficieny. The first ms pilot study proved this venous / circulation connection with ms, yet was ignored.

The second larger study also confirmed it.

Now we are beginning to get reports in about vascular changes from people who have adapted their beds.

Wake up people

This is real
Find us on Facebook.com/InclinedBedTherapy
IBT website: http://inclinedbedtherapy.com
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Postby GuRu » Sat Feb 13, 2010 6:34 am

We must learn our limits. We are all something, but none of us are everything.
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Postby cathyb » Sat Feb 13, 2010 7:01 am

OK, I have been thumped before for re-posting old info, but I did a search, so sorry for the repeat.

http://www.examiner.com/x-32750-Lima-Mu ... ges--CCSVI

Also,

http://ms.about.com/b/2010/02/09/ccsvi- ... endium.htm

Joan has already found this last link (she's in the comments), but thought I'd share on this thread the fact that someone in the know certainly agrees with us regarding media silence in the US. If nothing else, it backs us up!
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