Media Coverage on CCSVI!!!!!!!!!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Zeureka » Sat Feb 20, 2010 4:39 pm

2010 Neuro Film Festival: Breakfast with Pam
Rightly said: Let's put our brains together and support brain research! Let's put our brains together and support brain AND vein research!

This film has been entered into the 2010 Neuro Film Festival from the American Academy of Neurology Foundation at www.neurofilmfestival.com.
http://www.youtube.com/watch?v=HFbgqa-sCUE
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Postby GuRu » Tue Feb 23, 2010 4:40 pm

IÚnita: (an Italian newspaper)

http://www.unita.it/notizie_flash/89170 ... do_zamboni

Here is the Translation (Google)

HEALTH ': SCLEROSIS; ER, IS WORKING PROTOCOL METHOD ZAMBONI
(ANSA) - Bologna, Feb. 23 - It could start within the year clinical trials on the efficacy of therapeutic method for multiple sclerosis proposed by Professor Paolo Zamboni (University Hospital of Ferrara), in collaboration with Dr. Fabrizio Salvi ( Ospedale Bellaria, Bologna Ausl). A please and 'also deployed Nicoletta Mantovani. It is explained to 'the general manager of Emilia-Romagna Regional Health Agency Roberto Grilli who also said that shortly due to meet the technical group responsible for drafting the protocol for testing. ''Right now the thing most 'complex' well defined protocol. Funding - he added - not a problem between what can make available to the Emilia-Romagna and the Aism nationally.'' Grilli said that it will take 'more' than a month to define the protocol, then it will be treated 'to scrutinize ethics committees and to establish centers in Italy will be part of a trial. ''I hope that already 'in September we can start.'' The method starts from the recognition that patients with multiple sclerosis have a chronic venous insufficiency cerobrospinale (Ccsvi) which is now 'subject of study around the world. Even a research unit 'the Buffalo confirmed that 56.4% of patients and' suffer from this shortcoming. ''Even if the numbers are most Americans 'lower than those that have found us - Zamboni had commented in recent days - can be considered confirmation that the Ccsvi and' the main cause of risk for multiple sclerosis.'' In recent days, Nicoletta Mantovani had launched an appeal to the region:''Give the green light to the operations to the arteries of patients with multiple sclerosis.'' He had done on the pages Bolognese Republic and the newspaper recalled that the widow of Pavarotti and 'suffering from multiple sclerosis for 16 years. Now that''scientific confirmations come from the most 'parts of the world - had added the former Councilor of Giunta Delbono - I wish that our institutions act quickly: we must guarantee all patients the chance' to be carried out. Also because 'I know that all' foreign, against payment of astronomical figures, these interventions are still facts. Only here is not 'possible. Absurd. And 'as if those who present with a broken leg after the radiograph were saying' you plaster in two years'' '. The Mantovani, wrote the newspaper, and 'one of the thousand people on the waiting list. (ANSA).
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Postby GuRu » Sat Feb 27, 2010 4:20 am

We must learn our limits. We are all something, but none of us are everything.
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Postby GuRu » Tue Mar 02, 2010 7:29 am

We must learn our limits. We are all something, but none of us are everything.
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Research, Research, Research

Postby Ruthless67 » Tue Mar 02, 2010 10:29 am

GuRu,

Thanks for these links, they are good reading. I did get a smirk on my face though when I read this statement .

The B.C. researchers, who include radiologists, vascular specialists, and physicists working on new imaging technologies, say they had heard about the theory before CTV's W5 aired a story describing the theory, and were investigating the possibility of a study.

Easy for them to say that NOW isn't it.; and it’s hard to prove either way. Reminds me of my brother who has been saying for years now that he’s “thinking about quitting smoking.” You could say, he’s kind of “investigating the possibilities, lol. But at least now through the hard work of many, including Joan Beal (Cheerleader), Ashton Embry, Avis Favaro, and MS Patients all over the world, there is some pittance of research money available through the MS Society, and CCSVI absolutely cannot be swept under the rug. Dr. Zamboni’s call to action for “research, research, research!!!) is being answered! It’s a beautiful thing!!!!!

Lora
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Postby Mechanicallyinclined » Tue Mar 02, 2010 11:16 am

From what I can understand, the MS Society of Calgary has known about this study for years. Why then in Calgary, who has the highest rate of MS can we not get the tests done? They say that Alberta Health Services will never cover the costs of the tests because too many Albertans have MS,so it would be too expensive.
The intelligent people at the MS Calgary Chapter recently told me that "if a cure were to be found, we'd be out of a job".


It makes no sense that Alberta Health services will never cover the costs of tests . Does it make more sense that our pharmacare system continue to pay thousands of dollars eash year for each person on DMD's . In the long run, there could be money saved!

Also, the goal of the MS Society (they claim) is to find the cure for MS. Some day, they should be all out of a job! Don't worry, there are alot of other illnesses that we can concentrate on and find a cure for.
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Postby GuRu » Wed Mar 03, 2010 4:58 am

We must learn our limits. We are all something, but none of us are everything.
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Postby Algis » Wed Mar 03, 2010 5:36 am

This is Ella and Michelle :) Yipee!
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Postby Ruthless67 » Wed Mar 03, 2010 5:58 am

Way to go Ella and Michele!
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Re: Research, Research, Research

Postby GuRu » Wed Mar 03, 2010 7:21 am

Ruthless67 wrote:GuRu,

Thanks for these links, they are good reading. I did get a smirk on my face though when I read this statement .



Hi Lora!!
No need of Thanks, Here everyone is doing a lot for to help other, What I am doing just searching news and adding here. If its help some one its my pleasure :)
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Postby GuRu » Wed Mar 03, 2010 8:14 am

We must learn our limits. We are all something, but none of us are everything.
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Postby Ruthless67 » Wed Mar 03, 2010 10:39 pm

Guru,

Watch for a CCSVI article this week in the Wall Street Journal. My husband corrected me and said it's supposed to come out on Tuesday March 9th.

Lora
Last edited by Ruthless67 on Fri Mar 05, 2010 8:27 am, edited 1 time in total.
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Postby GuRu » Thu Mar 04, 2010 2:46 am

Ruthless67 wrote:Guru,

Watch for a CCSVI article this week in the Wall Street Journal.

Lora


OK,
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Postby GuRu » Thu Mar 04, 2010 3:06 am

We must learn our limits. We are all something, but none of us are everything.
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Postby GuRu » Thu Mar 04, 2010 5:31 am

We must learn our limits. We are all something, but none of us are everything.
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