Media Coverage on CCSVI!!!!!!!!!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
Post Reply
User avatar
GuRu
Family Elder
Posts: 127
Joined: Sun Dec 27, 2009 3:00 pm
Location: Germany
Contact:

Post by GuRu »

Last edited by GuRu on Fri Mar 05, 2010 8:03 am, edited 1 time in total.
We must learn our limits. We are all something, but none of us are everything.
GuRu
RRMS Dx 07/09
User avatar
GuRu
Family Elder
Posts: 127
Joined: Sun Dec 27, 2009 3:00 pm
Location: Germany
Contact:

Post by GuRu »

We must learn our limits. We are all something, but none of us are everything.
GuRu
RRMS Dx 07/09
User avatar
GuRu
Family Elder
Posts: 127
Joined: Sun Dec 27, 2009 3:00 pm
Location: Germany
Contact:

Post by GuRu »

We must learn our limits. We are all something, but none of us are everything.
GuRu
RRMS Dx 07/09
User avatar
GuRu
Family Elder
Posts: 127
Joined: Sun Dec 27, 2009 3:00 pm
Location: Germany
Contact:

Post by GuRu »

We must learn our limits. We are all something, but none of us are everything.
GuRu
RRMS Dx 07/09
User avatar
GuRu
Family Elder
Posts: 127
Joined: Sun Dec 27, 2009 3:00 pm
Location: Germany
Contact:

Post by GuRu »

We must learn our limits. We are all something, but none of us are everything.
GuRu
RRMS Dx 07/09
User avatar
GuRu
Family Elder
Posts: 127
Joined: Sun Dec 27, 2009 3:00 pm
Location: Germany
Contact:

Post by GuRu »

We must learn our limits. We are all something, but none of us are everything.
GuRu
RRMS Dx 07/09
User avatar
sbr487
Family Elder
Posts: 865
Joined: Tue Nov 24, 2009 3:00 pm
Location: India
Contact:

Post by sbr487 »

It might turn out that a venous blockage does not play any role at all in the progression of multiple sclerosis.
I am just curious, how are they going to decide if disease progression is linked to ccsvi ... lesion count?

What happens if lesions do not increase, at the same time do not decrease too (since the area has degenerated beyond repair)?

I am also curious what was the criteria used before approving DMDs as drugs that are useful for MS
Cece
Family Elder
Posts: 9335
Joined: Mon Jan 04, 2010 3:00 pm
Contact:

Post by Cece »

sbr487 wrote:I am just curious, how are they going to decide if disease progression is linked to ccsvi ... lesion count?
I suppose you're right, lesion count and length between relapses, although neither of those are as tightly tied to progression as previously thought.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
User avatar
happy_canuck
Family Elder
Posts: 270
Joined: Sat Nov 28, 2009 3:00 pm
Location: Victoria, BC Canada
Contact:

Post by happy_canuck »

Dr. Zamboni on TV in the US (CBC):

http://wcbstv.com/video/?id=139889@wcbs.dayport.com
National CCSVI Society: <strong><br /><a href="http://tinyurl.com/44znbct">http://tiny ... 44znbct</a> ~Website<br /><a href="http://tinyurl.com/3wzmkmg">http://tiny ... 3wzmkmg</a> ~Facebook</strong><br />
User avatar
tzootsi
Family Elder
Posts: 494
Joined: Sun Nov 22, 2009 3:00 pm
Contact:

Post by tzootsi »

Wow - finally something on a major US network - CBS!! Where is Joan's (Cheerleader) interview? I know CBS talked to her.
User avatar
cheerleader
Family Elder
Posts: 5361
Joined: Mon Sep 10, 2007 2:00 pm
Location: southern California

Post by cheerleader »

tzootsi wrote:Wow - finally something on a major US network - CBS!! Where is Joan's (Cheerleader) interview? I know CBS talked to her.
This is a local CBS story out of New York (channel 2). I posted it on Facebook after it was posted by the National MS Society on their Facebook page (!)
No info on when the national news story will show (they filmed us in California and Zamboni in Italy last December.)
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
User avatar
Sharon
Family Elder
Posts: 1283
Joined: Sun Nov 07, 2004 3:00 pm
Location: Colorado
Contact:

Post by Sharon »

The interview was filmed at the University of New York in February when Zamboni lectured at a Myelin Resource Group Meeting. The ABC local affiliate was also doing an interview for the San Francisco affiliate - Sammy Jo was part of the SF story - the airing I believe was around Feb. 10th.

ABC World News was scheduled to interview Zamboni at NYU - unfortunately, the interview was cancelled because the correspondent was pulled to do another story. Last time I spoke with the producer from ABC World News she was still planning on airing a spot -- it has just been postponed.

Sharon
User avatar
Ruthless67
Family Elder
Posts: 422
Joined: Tue Oct 27, 2009 3:00 pm
Location: Montana, USA
Contact:

Post by Ruthless67 »

I am glad to see something finally aired on US TV. I thought the over all report was very good but I cringed at the end when Dr. Max Gomez did his summation. Did anyone else catch his (shudder) message? Terribly subtle it was,…. not! Lol. This is the cover your ass but straddle the fence position of a true politician, and Dr. Gomez performed it like a true pro.

Lora
User avatar
Zeureka
Family Elder
Posts: 481
Joined: Thu Jan 14, 2010 3:00 pm
Location: Italy
Contact:

Post by Zeureka »

Another one on Italian TV again: CCSVI nella Sclerosi Multipla. Servizio andato in onda nel TGR Emilia Romagna del 10/03/2010

User avatar
Zeureka
Family Elder
Posts: 481
Joined: Thu Jan 14, 2010 3:00 pm
Location: Italy
Contact:

Post by Zeureka »

And on Italian Radio 3 Zamboni has been interviewed on causes, expressing congenital aspect and that some links have until now been underestimated, for example, he said, in every plaque there is a vein...

Also he said that success on improvements during his research was not necessarily linked to the fact that people had RR form of MS, but that more chances for improvements for people with less progression, as repair of already important damages more difficult.

Post Reply
  • Similar Topics
    Replies
    Views
    Last post

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”