Thanks SammyJo... great interview. You did a wonderful job and I was thinking maybe Meg Ryan as your stand in???
Thank goodness we FINALLY have some USA news coverage.. a milestone and hopefully a turning point? wow... even with the negatives (albeit not 100% accurate reporting), I still believe it IS moving forward in a positive way. The MS Society neuro. sure was a downer though, but to be expected.
I sure hope Dr. Dake comes out on top after all of this too... The Stanford neuro. dept. needs boycotted..
What still is amazing to me is that some folks want immediate results from ccsvi treatment after countless years of immune attacks to the cns? It "may" take years to recover... perhaps perm. damage occured? Stopping progression has to be the first priority, and only time will prove that. I'd gladly take it.
We all take meds. (some of us, anyway) with very little effectiveness and everybody "seems" to accept this without question (30% for the CRABS). Tysabri has better numbers, but can be deadly and you never see this in the news?
Bottom line is that we should have access to any damn treatment available... informed consent and all... let me decide, and not by people who have a vested interest under the guise of "protecting" me... period.
All the data, stats, and speculation flying around... I'd love nothing more than to switch places with a "normal control" for a day or two.. if we could all do this, we get any treatment we wanted..