U.K. support looks terrible

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

U.K. support looks terrible

Postby tazbo » Thu Feb 11, 2010 5:20 pm

http://www.mssociety.org.uk/research/az ... ccsvi.html
I will keep looking to see if this already posted.
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uk support looks terrible

Postby welshman » Thu Feb 11, 2010 5:41 pm

Hi tazbo, well at least the UK MS Soc put something out about the Buffalo study: here in Canada they haven't even mentioned it !!!! I know it's been said before on various TIMS forums, but the "MS Societies" just don't seem to care that this might be a possible and acceptable treatment for the disease, and that seems to be because their "advisers" are the Neuro doctors who might get their noses knocked right out of joint if indeed it can be shown that MS is not all about autoimmunity but might also involve cardio-vascular.
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Postby Katie41 » Thu Feb 11, 2010 6:46 pm

The MS Societies are not interested because their bread and butter for their publications come from the drug companies. :x
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Postby MSUK » Fri Feb 12, 2010 2:02 am

Taz, MSRC have been reporting CCSVI since the beginning, and now have an ever growing, comprehensive CCSVI section on our website - http://www.msrc.co.uk/index.cfm?fuseact ... ageid=2952

cheers

squiffs :wink:
MS-UK - http://www.ms-uk.org/
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Postby danegirl » Fri Feb 12, 2010 5:50 am

In Denmark, indeed throughout all of Scandinavia, the attitude of the MS-societies are extremely negative and press-coverage is nonexistant. VERY disapointing. We are working on it though... Hopefully we can change it.
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Postby tazbo » Fri Feb 12, 2010 9:57 am

squiffy2 wrote:Taz, MSRC have been reporting CCSVI since the beginning, and now have an ever growing, comprehensive CCSVI section on our website - http://www.msrc.co.uk/index.cfm?fuseact ... ageid=2952

cheers

squiffs :wink:

Thks for your info...did you miss that the article I gave the link for was from a different ms group?
Cheers
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Postby MSUK » Fri Feb 12, 2010 11:27 am

Yes Taz, I did know it was for another MS organasiation, not ours, I just wanted to remind readers that we at MSRC have been reporting all news and comment on CCSVI since Dr Zamboni first reported studies on it. :wink:
MS-UK - http://www.ms-uk.org/
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