Lyon wrote: I couldn't agree more. Not to seem condescending but through all this (my being the bad guy) I've been paying attention to CCSVI proponent's EDSS's and disabilities and take it to heart that they often have chosen CCSVI to pin the last of their hopes on and, my words not theirs, that often requires turning a blind eye to science.
The last part here is surprising...I'm not part of any other forum that scrutinizes scientist's press releases and PubMed abstracts whatsoever, much less to the degree that's done here. The group as a whole is actively seeking for the answers in science. The whole theory of CCSVI emerged out of science...it's not something I would have thought up on my own in a thousand years.
I can see where a red flag might go up if someone heads off to Poland on a trip they can't afford...and maybe someone here has done this, I don't know.
I actually think hope is a good thing. CCSVI has raised my hopes...so far I'm managing to live with the pain of hope! My husband does wonder why I'm unsettled by this waiting for answers period...we know our differences, he likes things messy and underway, I like things settled and decided, with closure.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition