If I may, I would caution that the findings released are very preliminary and it is difficult to assess them without seeing the actual study. A more in-depth analysis of the data will be released in April at a meeting of the American Academy of Neurology, and hopefully the full study will be published in a peer-reviewed journal after that.
And as I said in my article _ and Dr. Zivadinov agreed _ this is not "proof" of progression. It is merely an observational association at this point.
While I would be delighted if there is a connection that could end up in a treatment to help people with MS (including a dear friend of mine), as a longtime medical writer I worry about creating what could be false hope in people with the disease before anything is proven.
Hopefully that will be sooner than later.
Thanks for the info. But my head is reeling !! Why didn't Zivadinov report this in the press release ? There are so many %s floating around I don't know what to believe. These numbers certainly look more hopeful !!
fiddler wrote:No tazbo, what was reported in the Canadian Press was that, while the incidence of CCSVI in ALL MS patients was 55% (as the BNAC press release said), Zivadinov indicated that it was 80% in Clinically Diagnosed MSers. So nothing has changed from what has been discussed in other threads: while the incidence of CCSVI MAY be 55% (or 65%, depending how you count it) for some sort of broadly defined category of MSer (and we don't know how that was defined) it is 80% for people who have been clinically diagnosed.
Therefore, if the numbers are confirmed, this leaves only one possiblity: The stenosis and venous malformations are not congenital, but progressive, and there is still an unknown latent problem in MS patients that produces venous deformations and in turn, lesions in the brain.
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